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专为帕金森病患者设计的舞蹈课程的意义和对幸福感的影响。

The meaning and impact on well-being of bespoke dancing sessions for those living with Parkinson's.

机构信息

Centre for Public Health EBC, Bournemouth University, Dorset, UK.

Public Health & Wellbeing, Bournemouth University, Bournemouth, UK.

出版信息

Int J Qual Stud Health Well-being. 2023 Dec;18(1):2245593. doi: 10.1080/17482631.2023.2245593.

DOI:10.1080/17482631.2023.2245593
PMID:37559339
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10416735/
Abstract

PURPOSE

This paper presents qualitative research findings from the evaluation of a Parkinson's Dance well-being venture in the UK.

METHODS

Qualitative data was gathered to see how bespoke dancing sessions helped people with Parkinson's (PwP) to manage their conditions and improve their lives and prospects. Principles of a participatory approach were incorporated and methods included semi-structured interviewing, researchers participant observation and an elicitation-based activity. Nineteen PwP, six carers, four dance artists and seven helpers participated in the study.

RESULTS

Participating in Parkinson's Dance sessions meant that PwP could experience the possibilities to dance, develop a "can do" attitude, experience fun, enjoyment, social connection, exercise, movement to music, improvement and/or maintenance of their balance, suppleness, coordination and confidence with movement, symptoms being pushed back and ability to learn new things.

CONCLUSIONS

Our findings add to the evidence-base about the benefits of dance for people experiencing Parkinson's and through novel application of the Life-world based well-being framework of K. T. Galvin and Todres (2011) we propose a theoretical basis for Parkinson's Dance as a resource for well-being. There is scope to consider application of the well-being framework to other arts activities and as the basis of an arts and well-being evaluation tool.

摘要

目的

本文呈现了在英国对帕金森舞蹈幸福计划进行评估的定性研究结果。

方法

收集定性数据,以了解定制舞蹈课程如何帮助帕金森病患者(PwP)管理他们的病情,改善他们的生活和前景。采用参与式方法原则,方法包括半结构化访谈、研究人员参与观察和基于启发的活动。19 名帕金森病患者、6 名护理人员、4 名舞蹈艺术家和 7 名志愿者参与了这项研究。

结果

参与帕金森舞蹈课程意味着帕金森病患者能够体验到跳舞的可能性,培养一种“能做”的态度,体验乐趣、享受、社交联系、运动、随音乐运动、改善和/或维持平衡、柔韧性、协调性和运动自信,将症状推回,以及学习新事物的能力。

结论

我们的研究结果增加了关于舞蹈对帕金森病患者的益处的证据基础,通过 K. T. Galvin 和 Todres(2011)的基于生活世界的幸福感框架的新颖应用,我们提出了帕金森舞蹈作为幸福感资源的理论基础。可以考虑将幸福感框架应用于其他艺术活动,并作为艺术和幸福感评估工具的基础。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/d029b8cab83c/ZQHW_A_2245593_F0004_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/0f12ef133e06/ZQHW_A_2245593_F0001_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/e7aafb0f0160/ZQHW_A_2245593_F0002_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/8a28e85218e8/ZQHW_A_2245593_F0003_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/d029b8cab83c/ZQHW_A_2245593_F0004_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/0f12ef133e06/ZQHW_A_2245593_F0001_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/e7aafb0f0160/ZQHW_A_2245593_F0002_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/8a28e85218e8/ZQHW_A_2245593_F0003_OC.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8e9a/10416735/d029b8cab83c/ZQHW_A_2245593_F0004_OC.jpg

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本文引用的文献

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Study protocol: randomised controlled hybrid type 2 trial evaluating the scale-up of two arts interventions for postnatal depression and Parkinson's disease.研究方案:随机对照混合 2 型试验,评估两种艺术干预措施在后产后抑郁症和帕金森病中的扩大应用。
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Confronting the Complexities of "Co-Production" in Participatory Health Research: A Critical, Reflexive Approach to Power Dynamics in a Collaborative Project on Parkinson's Dance.
应对参与式健康研究中“共同生产”的复杂性:对帕金森舞蹈合作项目中权力动态的批判性、反思性方法。
Qual Health Res. 2021 Jun;31(7):1290-1305. doi: 10.1177/10497323211003863. Epub 2021 Apr 24.
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'Digital Dancing' - "Can you see, what I feel" - An exploration of the physical 'experience' of dance for Parkinson's through 3-dimensional motion analysis.“数字之舞”——“你能否感受,我之所想”——通过三维运动分析探索帕金森病患者的舞蹈身体“体验”。
Complement Ther Med. 2020 Aug;52:102508. doi: 10.1016/j.ctim.2020.102508. Epub 2020 Jul 11.
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The efficacy of dance for improving motor impairments, non-motor symptoms, and quality of life in Parkinson's disease: A systematic review and meta-analysis.舞蹈改善帕金森病运动障碍、非运动症状和生活质量的疗效:系统评价和荟萃分析。
PLoS One. 2020 Aug 5;15(8):e0236820. doi: 10.1371/journal.pone.0236820. eCollection 2020.
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What People with Parkinson's Disease Want.帕金森病患者的需求。
J Parkinsons Dis. 2020;10(s1):S5-S10. doi: 10.3233/JPD-202107.
7
The Most Bothersome Aspects of Periods Reported by Individuals with Parkinson's Disease.帕金森病患者报告的经期最困扰的方面。
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Voice changes in Parkinson's disease: What are they telling us?帕金森病中的语音变化:它们在告诉我们什么?
J Clin Neurosci. 2020 Feb;72:1-7. doi: 10.1016/j.jocn.2019.12.029. Epub 2020 Jan 14.
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