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《坚持运动》:帕金森病患者及其照护伙伴在舞蹈课中的体验。

"Keep Moving": Experiences of People With Parkinson's and Their Care Partners in a Dance Class.

机构信息

University of Wisconsin-Madison.

Syracuse University.

出版信息

Adapt Phys Activ Q. 2021 Feb 16;38(2):307-328. doi: 10.1123/apaq.2019-0125. Print 2021 Apr 1.

DOI:10.1123/apaq.2019-0125
PMID:33596544
Abstract

The purpose of this study was to examine the experiences of people with Parkinson's (PwP) and their care partners (CPs) who participated in a Parkinson's-focused community dance class in a northeastern state of the United States. In this qualitative inquiry, participants included five PwP and their respective CPs (n = 5). Three major, recurrent, and interrelated themes emerged from the data. These themes were (a) keep moving, (b) compassion in action, and (c) acceptance and freedom in dance. These themes captured personal and environmental factors that influenced the participation of PwP and their CPs in a dance class and how they perceived that dance influenced their quality of life. The themes described the obstacles, motives, and perceived outcomes of participating in dance. The findings emphasize the need for future dance interventions and programs that consider the CPs' role in promoting participation for PwP in dance classes.

摘要

本研究旨在探讨参与美国东北部一个以帕金森病为重点的社区舞蹈班的帕金森病患者(PwP)及其照顾者(CPs)的体验。在这项定性研究中,参与者包括五名 PwP 及其各自的 CPs(n = 5)。数据中出现了三个主要的、反复出现的、相互关联的主题。这些主题是(a)保持运动,(b)行动中的同情,以及(c)接受和自由的舞蹈。这些主题捕捉到了影响 PwP 和他们的 CPs 参加舞蹈班的个人和环境因素,以及他们如何感知舞蹈对他们的生活质量的影响。主题描述了参加舞蹈的障碍、动机和感知结果。研究结果强调了未来舞蹈干预和计划的必要性,这些计划应考虑 CPs 在促进 PwP 参加舞蹈班方面的作用。

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Adapt Phys Activ Q. 2021 Feb 16;38(2):307-328. doi: 10.1123/apaq.2019-0125. Print 2021 Apr 1.
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引用本文的文献

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Parkinson's Disease and Caregiving Roles, Demands, and Support Needs and Experiences: A Scoping Review.帕金森病与照料角色、需求、支持需求及经历:一项范围综述
Healthcare (Basel). 2025 Jan 4;13(1):79. doi: 10.3390/healthcare13010079.
2
Barriers and facilitators for healthcare providers to implement family-centered care in Parkinson's disease: a scoping review.医疗保健提供者在帕金森病中实施以家庭为中心护理的障碍与促进因素:一项范围综述
Front Neurol. 2023 Aug 25;14:1231654. doi: 10.3389/fneur.2023.1231654. eCollection 2023.
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The impact of dance activities on the health of persons with Parkinson's disease in Sweden.
舞蹈活动对瑞典帕金森病患者健康的影响。
Int J Qual Stud Health Well-being. 2021 Dec;16(1):1992842. doi: 10.1080/17482631.2021.1992842.
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"I'm Never Going to Be in Phantom of the Opera": Relational and Emotional Wellbeing of Parkinson's Carers and Their Partners in and Beyond Dancing.“我永远不会出演《歌剧魅影》”:帕金森病患者照料者及其伴侣在舞蹈内外的人际关系与情感健康
Front Psychol. 2021 Jul 29;12:636135. doi: 10.3389/fpsyg.2021.636135. eCollection 2021.