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本文引用的文献

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Couples living with Alzheimer's disease talk about sex and intimacy: A phenomenological qualitative study.
Dementia (London). 2023 Feb;22(2):390-404. doi: 10.1177/14713012221149759. Epub 2023 Jan 3.
2
Through Thick and Thin: The Meaning of Dementia for the Intimacy of Ageing Couples.同甘共苦:痴呆症对老年夫妇亲密关系的意义
Healthcare (Basel). 2022 Dec 17;10(12):2559. doi: 10.3390/healthcare10122559.
3
Maintaining or letting go of couplehood: Perspectives of older male spousal dementia caregivers.维持或放弃夫妻关系:老年男性配偶痴呆症照顾者的观点。
Scand J Caring Sci. 2022 Sep;36(3):742-751. doi: 10.1111/scs.13035. Epub 2021 Sep 26.
4
Couplehood as a compass: Spousal perspectives on the diminished everyday competence of partners.夫妻关系作为指南针:配偶对伴侣日常能力下降的看法。
Dementia (London). 2021 Oct;20(7):2380-2392. doi: 10.1177/1471301221997306. Epub 2021 Feb 24.
5
Shared Experiences of Resilience Amongst Couples Where One Partner Is Living With Dementia-A Grounded Theory Study.一方患有痴呆症的夫妻间恢复力的共同经历——一项扎根理论研究
Front Med (Lausanne). 2020 Jun 9;7:219. doi: 10.3389/fmed.2020.00219. eCollection 2020.
6
Buffer or Blade: Perceived relationship closeness in couples navigating Alzheimer's.缓冲还是利刃:阿尔茨海默病患者夫妻关系中的亲密感。
J Aging Stud. 2020 Mar;52:100832. doi: 10.1016/j.jaging.2020.100832. Epub 2020 Jan 27.
7
The value of "us"-Expressions of togetherness in couples where one spouse has dementia.夫妻一方患有痴呆症时的“我们”表达:共同感的价值。
Int J Older People Nurs. 2020 Jun;15(2):e12299. doi: 10.1111/opn.12299. Epub 2019 Dec 30.
8
Perceptions of couplehood among community-dwelling spousal caregivers.社区居住的配偶照顾者对夫妻关系的看法。
Aging Ment Health. 2020 Sep;24(9):1429-1436. doi: 10.1080/13607863.2019.1594168. Epub 2019 Apr 3.
9
Unyielding selflessness: Relational negotiations, dementia and care.
J Aging Stud. 2018 Dec;47:32-38. doi: 10.1016/j.jaging.2018.10.001. Epub 2018 Oct 21.
10
Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia.共同生活和做事:夫妻双方一方患有痴呆症的合作研究。
Qual Health Res. 2018 Sep;28(11):1719-1734. doi: 10.1177/1049732318786944. Epub 2018 Jul 21.

配偶与痴呆症:探究夫妻关系概念的关系基础。

The Spousal Unit and Dementia: Investigating the Relational Basis of the Couplehood Concept.

作者信息

Weicht Bernhard, Tolhurst Edward

机构信息

Department of Sociology, University of Innsbruck, 6020 Innsbruck, Austria.

School of Health, Science and Wellbeing, Staffordshire University, Stoke-on-Trent ST4 2DE, UK.

出版信息

Healthcare (Basel). 2023 Aug 3;11(15):2191. doi: 10.3390/healthcare11152191.

DOI:10.3390/healthcare11152191
PMID:37570431
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10418721/
Abstract

A strong emphasis is consistently placed upon the relational basis of experience within social scientific dementia research. Within this research corpus, the concept of couplehood is increasingly employed, albeit in rather undefined and loosely theorised ways. Moreover, the evaluation highlights that couplehood is often defined by a normative position that seeks to convey an affirmative perspective on dementia and spousal relationships. The lack of theoretical foundation, however, weakens the explanatory potential of the concept, both for theorising dementia, as well as for empirical research. This article critically evaluates the utility of the couplehood concept by delineating three underlying theoretical conceptions: phenomenological, interactional and relational perspectives. It will be argued that those theoretical threads offer different analytical angles and research opportunities. More thorough ontological development, however, can guide understandings of the complexities that underpin the relational experience of dementia. This will promote a conceptual starting point that offers a more balanced and multifaceted accommodation of two persons and their relationship.

摘要

社会科学领域的痴呆症研究一直非常强调经验的关系基础。在这个研究体系中,伴侣关系的概念越来越多地被使用,尽管其定义相当模糊,理论化程度也很低。此外,评估强调,伴侣关系往往由一种规范性立场来定义,这种立场试图传达对痴呆症和配偶关系的肯定观点。然而,缺乏理论基础削弱了这一概念的解释潜力,无论是在痴呆症理论化方面,还是在实证研究方面。本文通过阐述三个潜在的理论概念:现象学、互动和关系视角,批判性地评估了伴侣关系概念的效用。将论证这些理论线索提供了不同的分析角度和研究机会。然而,更彻底的本体论发展可以引导我们理解支撑痴呆症关系体验的复杂性。这将促进一个概念起点,为两个人及其关系提供更平衡、多方面的阐释。