Mahsa Meimandi, MSc, is PhD Candidate, Rehabilitation Research Center, Department of Occupational Therapy, School of Rehabilitation Sciences, Iran University of Medical Sciences, Tehran, Iran.
Ghorban Taghizadeh, PhD, is Associate Professor, Rehabilitation Research Center, Department of Occupational Therapy, School of Rehabilitation Sciences, Iran University of Medical Sciences, Tehran, Iran.
Am J Occup Ther. 2023 Jul 1;77(4). doi: 10.5014/ajot.2023.050128.
The ability to perform voluntary actions is disrupted in Parkinson's disease (PD). Voluntary activities play a critical role in generating sense of agency, which underpins the concept of responsibility for people's daily occupations and their outcomes. According to this concept, the dearth of research regarding the concept of responsibility in rehabilitation hampers practitioners in delivering evidence-based care.
To generate a list of occupations that enhance an inherent sense of responsibility among people with PD that is based on consensus among experts.
An anonymous and iterative Delphi study with two rounds.
Electronic survey.
One hundred sixteen experts participated in the first round of the study, and 95 participated in the second round.
Panelists rated the level of inherent responsibility in each occupation and the importance of types of patient-related information on a 5-point Likert scale. Consensus was defined as reaching an interquartile range of >1.
In the first round, consensus was reached on 19 occupations and all 38 types of patient-related information. Also, an additional 15 occupations and 16 types of patient-related information were added to the lists. Consensus was reached for all occupations and patient-related information presented in the second round.
Our results indicate that 61 occupations were deemed to enhance a moderate to a very high inherent sense of responsibility among people with PD. In addition, a wide range of patient-related information is considered very important or important while these occupation-focused interventions are delivered. What This Article Adds: Subjective knowledge of one's actions and their consequences lies behind people's daily occupations. Considering this knowledge when administering occupation-focused interventions can be beneficial for individuals with PD.
帕金森病（PD）患者的自主运动能力受到了破坏。自主活动在产生主体感方面起着至关重要的作用，而主体感则是人们对日常职业及其结果负责的概念的基础。根据这一概念，康复领域对责任概念的研究不足，这使得从业者难以提供基于证据的护理。
基于专家共识，生成一份能够增强 PD 患者内在责任感的职业清单。
两轮匿名迭代 Delphi 研究。
电子调查。
116 名专家参加了第一轮研究，95 名专家参加了第二轮研究。
小组成员对每项职业的内在责任感水平以及与患者相关的 38 种信息类型的重要性进行了 5 分制 Likert 评分。一致性定义为达到四分位距>1。
在第一轮中，就 19 种职业和所有 38 种患者相关信息达成了共识。此外，还在清单中添加了 15 种职业和 16 种患者相关信息。在第二轮中，对所有职业和患者相关信息都达成了共识。
我们的研究结果表明，有 61 种职业被认为可以增强 PD 患者的中度至高度内在责任感。此外，在提供以职业为中心的干预措施时，广泛的患者相关信息被认为非常重要或重要。
对自身行为及其后果的主观认识是人们日常活动的基础。在实施以职业为中心的干预措施时考虑这些知识可能对 PD 患者有益。
