Kyota Ayumi, Kanda Kiyoko, Senuma Maiko, Tsukagoshi Noriko, Futawatari Tamae, Kondo Yuka
Department of Nursing, Gunma University Graduate School of Health Sciences, 3-39-22 Showa-machi, Maebashi, Gunma, 371-8514, Japan.
Niigata College of Nursing, 240 Shinnan-cho, Joetsu, Niigata, 943-0147, Japan.
Eur J Oncol Nurs. 2023 Oct;66:102354. doi: 10.1016/j.ejon.2023.102354. Epub 2023 Jun 15.
This study aims to clarify the perceptions on life and death among patients with the end-of-life stage cancer through a systematic review.
The search strategy combined MeSH terminology with free text searches, and was applied to the PubMed, CINAHL, Embase, and ICHUSHI (Japan Medical Abstracts Society) databases covering from 2010 to 5/2022. To ensure the quality of the research included, the Critical Appraisal Skills Program Qualitative Studies Checklist was used. Data relating to the perceptions of life and death of patients with the end-of-life stage cancer was extracted and analyzed with reference to qualitative meta-synthesis methods.
Ultimately, 50 studies were included. Five themes were derived based on the perceptions of life and death of patients with the end-of-life stage cancer: despair, making sense of death, how to live the rest of life, special feelings for loved ones, and fluctuation. By making sense of death in their own way, and reconciling it with their current situation, patients with the end-of-life stage cancer, even in despair over their impending death, look ahead into the future and their surroundings and consider how they would live the remaining time they have. During this time, the special feelings they have for their loved ones make an impact.
An important new finding from this study lies in the fact that the patients' desire to live as ordinary people who were not patients were expressed as a face that they hid from their families. Further research is needed in low-income countries/regions.
本研究旨在通过系统评价,阐明终末期癌症患者对生死的看法。
检索策略将医学主题词表术语与自由文本搜索相结合,并应用于2010年至2022年5月的PubMed、CINAHL、Embase和ICHUSHI(日本医学摘要协会)数据库。为确保纳入研究的质量,使用了批判性评估技能计划定性研究清单。参照定性元综合方法,提取并分析了与终末期癌症患者生死观相关的数据。
最终纳入50项研究。基于终末期癌症患者的生死观得出了五个主题:绝望、理解死亡、如何度过余生、对亲人的特殊情感以及波动。终末期癌症患者即使对即将到来的死亡感到绝望,也会以自己的方式理解死亡,并使其与当前状况相协调,展望未来和周围环境,思考如何度过剩余的时光。在此期间,他们对亲人的特殊情感会产生影响。
本研究的一个重要新发现是,患者作为非患者的普通人生活的愿望,表现为他们向家人隐藏的一面。低收入国家/地区需要进一步研究。