School of Electrical Engineering and Computer Science, KTH Royal Institute of Technology, Stockholm, Sweden.
Habilitation & Health, Region Västra Götaland, Skövde, Sweden.
J Med Internet Res. 2023 Aug 17;25:e45118. doi: 10.2196/45118.
Accessibility is acknowledged as a key to inclusion in the Convention of Rights for People with Disabilities. An inaccessible design can result in exclusion from eHealth and cause disability among people who have impairments.
This scoping literature review aimed to investigate how eHealth services have been developed and evaluated regarding accessibility for people with impairments.
In line with Arksey and O'Malley's framework for scoping studies and using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR), we conducted a search in 4 databases (PubMed, Scopus, IEEE, and Web of Science) in October 2020 and an update of the search in June 2022. The search strategy was structured according to the PICO model as follows: Population/Problem, digital accessibility for users with impairment; Intervention, health care delivered by any digital solution; Comparison, not applicable; Outcome, use of and adherence to (1) Web Content Accessibility Guidelines (WCAG), (2) other accessibility guidelines, and (3) other means, for designing or evaluating accessibility in eHealth services. A Boolean search was conducted by combining terms related to accessibility and eHealth. All authors participated in screening abstracts according to the eligibility criteria. Each publication, containing a potentially relevant abstract, was read (full text) and assessed for eligibility by 2 authors independently and pairwise. Publications deemed eligible were read by all authors and discussed for consensus.
A total of 8643 publications were identified. After abstract screening, 131 publications remained for full-text reading. Of those, 116 publications were excluded as they did not meet the eligibility criteria. Fifteen publications involving studies of 12 eHealth services were included in the study. Of the 15 publications, 2 provided a definition of accessibility, 5 provided an explanation of accessibility, and 8 did not provide any explanation. Five publications used the WCAG to evaluate accessibility when developing eHealth services. One publication used International Organization for Standardization (ISO) 29138, ISO 2941, and ISO/International Electrotechnical Commission (IEC) 30071-1 standards together with the Spanish Association for Standardization (UNE) 139803 standard. Eleven publications used other means to address accessibility, including text-level grading; literature review about accessibility; user tests, focus groups, interviews, and design workshops with target groups of patients, relatives, and health care professionals; and comparative analysis of existing technical solutions to provide information about useful requirements.
Although a clear definition of accessibility can enhance operationalization and thus measurability when evaluating accessibility in eHealth services, accessibility was insufficiently defined in most of the included studies. Further, accessibility guidelines and standards were used to a very limited extent in the development and evaluation of eHealth services. Guidelines for developing complex interventions that include guidance for accessibility are motivated to ensure that accessibility will be considered systematically in eHealth services.
可及性被认为是《残疾人权利公约》中包容性的关键。无障碍设计可能导致电子健康服务的使用受阻,并导致残疾人的残疾。
本范围文献综述旨在调查电子健康服务在为残疾人提供可及性方面的开发和评估情况。
根据 Arksey 和 O'Malley 的范围研究框架,并使用系统评价和荟萃分析扩展的首选报告项目(PRISMA-ScR),我们于 2020 年 10 月在 4 个数据库(PubMed、Scopus、IEEE 和 Web of Science)中进行了搜索,并于 2022 年 6 月进行了搜索更新。搜索策略根据 PICO 模型构建,如下所示:人群/问题,有障碍的用户的数字可及性;干预,任何数字解决方案提供的医疗保健;比较,不适用;结果,使用和遵守(1)Web 内容可访问性指南(WCAG),(2)其他可访问性指南,以及(3)电子健康服务中设计或评估可访问性的其他方法。通过结合与可及性和电子健康相关的术语进行布尔搜索。所有作者都根据入选标准参与了摘要筛选。每篇包含潜在相关摘要的出版物都由两名作者独立进行阅读(全文)并评估其入选资格。被认为符合入选标准的出版物由所有作者阅读,并进行共识讨论。
共确定了 8643 篇出版物。经过摘要筛选,有 131 篇论文仍需全文阅读。其中,116 篇因不符合入选标准而被排除。15 篇涉及 12 项电子健康服务研究的出版物被纳入研究。在这 15 篇出版物中,有 2 篇提供了可及性的定义,5 篇提供了可及性的解释,8 篇没有提供任何解释。有 5 篇出版物在开发电子健康服务时使用了 WCAG 来评估可及性。有 1 篇出版物使用了国际标准化组织(ISO)29138、ISO 2941 和 ISO/国际电工委员会(IEC)30071-1 标准以及西班牙标准化协会(UNE)139803 标准。有 11 篇出版物使用了其他方法来解决可及性问题,包括文本级分级;关于可及性的文献综述;针对患者、亲属和医疗保健专业人员等目标群体的用户测试、焦点小组、访谈和设计研讨会;以及对现有技术解决方案的比较分析,以提供有关有用要求的信息。
尽管在评估电子健康服务的可及性时,明确的可及性定义可以增强可操作性,从而提高可衡量性,但在大多数纳入的研究中,可及性的定义不够明确。此外,在电子健康服务的开发和评估中,无障碍准则和标准的使用非常有限。制定包括无障碍指南的复杂干预措施的准则是为了确保在电子健康服务中系统地考虑无障碍性。