Parra-Izquierdo Viviana, Frías-Ordoñez Juan Sebastián, Márquez Juan Ricardo, Puentes-Manosalva Fabián Eduardo, Sarmiento Fernando, García-Duperly Rafael, Vargas Melquisedec, Reyes Gustavo, Samper Carolina, Barreiro-de-Acosta Manuel
Gastroenterología y Reumatología, Hospital Internacional de Colombia, Bucaramanga, Colombia; Fundación Colombiana de Enfermedad Inflamatoria Intestinal, Bucaramanga, Colombia.
Medicina interna. Universidad de La Sabana. Chia, Cundinamarca, Colombia.
Rev Gastroenterol Peru. 2023 Apr-Jun;43(2):95-103.
In Colombia there are no data about perception of quality of life (QoL) in inflammatory bowel disease (IBD). The aim of this study was to determine the perception of QoL by means of the IBDQ-32 questionnaire in patients with IBD from a sample of patients from different referral centers. We carried out a cross-sectional study in adults with IBD in clinical remission, in outpatient follow-up, in 3 institutions in different cities, between June 2022 and November 2022, eligible subjects were identified, information was collected on different dates, about socio-demographic and clinical aspects, and the IBDQ-32 questionnaire was evaluated on one occasion. Descriptive and analytical analysis of the variables evaluated was performed. 80 patients, 70% women, mean age 38.5(range 18-72; SD 13.25) years. 67.5% ulcerative colitis (UC), 32.5% Crohn's disease (CD). Moderate QoL involvement (median 150 points, interquartile range118.3-181.5) was found in IBD, in UC median 151 (interquartile range120-174.75) points, while in CD 133 (interquartile range106.25-186.25) points. There was greater involvement in the systemic domain, with median 21 (interquartile range 15.8-27) points, and 18.5 (interquartile range 12.8-25.3) points, for UC and CD, respectively. The least affected corresponded to the digestive domain and social function, in median UC 48.5 (interquartile range 40-58.3), and 27(interquartile range 20.8-33); in median CD 43 (interquartile range 35.5-61.75) and 24.5(interquartile range 18-32.5), respectively. No statistically significant differences were found. This study provides unique information about QoL of patients with IBD in Colombia. It is necessary to continue reinforcing the accompaniment, support, and education of patients with IBD.
在哥伦比亚，尚无关于炎症性肠病（IBD）患者生活质量（QoL）认知情况的数据。本研究旨在通过IBDQ - 32问卷，确定来自不同转诊中心的IBD患者样本对生活质量的认知。2022年6月至2022年11月期间，我们在不同城市的3家机构对处于临床缓解期、接受门诊随访的成年IBD患者开展了一项横断面研究。确定符合条件的受试者后，在不同日期收集了有关社会人口学和临床方面的信息，并一次性评估了IBDQ - 32问卷。对所评估变量进行了描述性和分析性分析。80名患者，70%为女性，平均年龄38.5岁（范围18 - 72岁；标准差13.25）。67.5%为溃疡性结肠炎（UC），32.5%为克罗恩病（CD）。发现IBD患者的生活质量受中度影响（中位数150分，四分位间距118.3 - 181.5），UC患者中位数为151分（四分位间距120 - 174.75），而CD患者为133分（四分位间距106.25 - 186.25）。全身领域受影响更大，UC患者中位数为21分（四分位间距15.8 - 27），CD患者为18.5分（四分位间距12.8 - 25.3）。受影响最小的是消化领域和社会功能，UC患者中位数分别为48.5分（四分位间距40 - 58.3）和27分（四分位间距20.8 - 33）；CD患者中位数分别为43分（四分位间距35.5 - 61.75）和24.5分（四分位间距18 - 32.5）。未发现统计学上的显著差异。本研究提供了关于哥伦比亚IBD患者生活质量的独特信息。有必要继续加强对IBD患者的陪伴、支持和教育。
