Department of Endocrinology, The First Affiliated Hospital with Nanjing Medical University (Jiangsu Province Hospital), Jiangsu, China.
Department of Endocrinology, Children's Hospital of Nanjing Medical University, Jiangsu, China.
J Pediatr Nurs. 2023 Nov-Dec;73:1-6. doi: 10.1016/j.pedn.2023.08.012. Epub 2023 Aug 17.
The purpose of this study was to clarify the relationship between eHealth literacy, diabetic behavior rating, and caregiving burden among caregivers of children with type 1 diabetes mellitus (T1DM).
A questionnaire-based cross-sectional study of 143 primary caregivers of T1DM was conducted. Electronic health literacy was quantified using the Chinese version of the eHealth Literacy Scale (eHEALS). Their diabetic management behavior rating and caregiving burden were measured by Diabetes Behavior Rating Scale-Parent Version (DBRS-P) and Zarit Burden Interview (ZBI), respectively. Pearson correlation analysis was used to estimate the relationship between the above variables.
Only 54 (37.76%) caregivers qualified by eHEALS scale, with a total score of 30.07 ± 4.54 out of 40. A positive correlation between DRBS-P scores and the scores of eHEALS (Pearson correlation coefficient r = 0.226, P = 0.007) and a negative correlation between ZBI and eHEALS scores (r = -0.166, P = 0.047) were observed.
The eHealth literacy level of caregivers of children with T1DM in China remains to be improved. Caregivers with higher eHealth literacy had better diabetic management behaviors and less caregiving burden.
This study suggests that hierarchical electronic health-based interventions should be designed according to the different levels of eHealth literacy of individuals, to enhance the ability of caregivers with different eHealth literacy levels to fully utilize eHealth resources to improve their daily disease management skills and reduce their burden when caring for T1DM children. In addition, improving eHealth literacy of caregivers for children with T1DM can be one of the important ways to enhance the effectiveness of electronic health-based programs designed for them.
本研究旨在阐明电子健康素养、糖尿病行为评分与 1 型糖尿病（T1DM）患儿照顾者的照护负担之间的关系。
采用基于问卷的横断面研究，对 143 名 T1DM 患儿的主要照顾者进行调查。使用电子健康素养量表（eHEALS）的中文版本来量化电子健康素养。使用糖尿病行为评分量表-家长版（DBRS-P）和照顾者负担量表（ZBI）分别测量其糖尿病管理行为评分和照护负担。采用 Pearson 相关分析评估上述变量之间的关系。
仅有 54 名（37.76%）照顾者符合 eHEALS 量表标准，总分为 30.07±4.54 分（满分 40 分）。DBRS-P 评分与 eHEALS 评分呈正相关（Pearson 相关系数 r=0.226，P=0.007），ZBI 与 eHEALS 评分呈负相关（r=-0.166，P=0.047）。
中国 T1DM 患儿照顾者的电子健康素养水平有待提高。电子健康素养较高的照顾者具有更好的糖尿病管理行为和更低的照护负担。
本研究提示应根据个体不同的电子健康素养水平设计分层电子健康干预措施，提高不同电子健康素养水平照顾者充分利用电子健康资源的能力，提升其日常疾病管理技能，减轻照护 T1DM 患儿的负担。此外，提高 T1DM 患儿照顾者的电子健康素养水平可以成为增强针对他们的电子健康计划效果的重要途径之一。
