Research Department Emergency and Critical Care, HAN University of Applied Sciences, School of Health Studies, Nijmegen, the Netherlands; Intensive Care Unit, Radboud University Medical Center, Nijmegen, the Netherlands.
Research Department Emergency and Critical Care, HAN University of Applied Sciences, School of Health Studies, Nijmegen, the Netherlands; Department of Rehabilitation - Physical Therapy, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, the Netherlands.
Intensive Crit Care Nurs. 2023 Dec;79:103525. doi: 10.1016/j.iccn.2023.103525. Epub 2023 Aug 18.
To examine the needs, perceptions and influencing factors according to former adult intensive care unit patients and relatives with regard to family participation in essential care in the unit.
A qualitative interpretive descriptive study using inductive thematic analysis.
Twelve pairs of former Dutch patients and their relatives were interviewed within two months after the patient's discharge from the unit between December 2017 and April 2018.
Four themes emerged: the family's history, the patient's condition, supporting the patient and supporting the relative. The family's history, in particular the relationship with the patient and former experience with care, determined the level of participation in essential care. The level of participation was also influenced by the patient's condition, more specifically level of consciousness, stability of the patient's situation and length of the patient's stay. The third theme, supporting the patient, related to presence/being able to 'be there' for the patient and a mostly positive attitude towards family participation. The last theme was supporting the relative, with three subthemes associated with relatives' needs and perceptions: (dis)comfort with participation in essential care, need for invitation and support, and concern about the possible strain experienced by relatives.
Supporting the patient and supporting the relative are reflecting the needs and perceptions of patients and relatives regarding family participation in essential care. Both the family's history and the patient's condition influence the relative's level of participation. Intensive care unit nurses and other healthcare providers could take these themes into account when encouraging family participation in essential care.
Patients' and relatives' needs and perceptions of family participation in essential care in the intensive care unit vary. Family participation in essential care is influenced by the family's history and the patient's condition. Healthcare providers could take these findings into account when implementing family participation in essential care.
调查曾入住成人重症监护病房的患者及其家属对患者家属参与重症监护病房基本护理的需求、看法和影响因素。
采用定性解释描述性研究，使用归纳主题分析法。
2017 年 12 月至 2018 年 4 月，在患者出院后两个月内，对 12 对荷兰前患者及其家属进行了访谈。
出现了 4 个主题：家庭背景、患者病情、支持患者和支持家属。家庭背景，特别是与患者的关系和以前的护理经验，决定了参与基本护理的程度。参与程度还受到患者病情的影响，更具体地说是意识水平、患者情况的稳定性和患者住院时间。第三个主题是支持患者，与患者的存在/能够“在那里”和对家属参与的积极态度有关。最后一个主题是支持家属，有三个亚主题与亲属的需求和看法有关：（不适于）参与基本护理、需要邀请和支持以及对亲属可能感到紧张的担忧。
支持患者和支持家属反映了患者和家属对患者家属参与重症监护病房基本护理的需求和看法。家庭背景和患者病情都影响家属的参与程度。重症监护病房护士和其他医护人员在鼓励家属参与基本护理时，可以考虑这些主题。
患者和家属对重症监护病房基本护理中家属参与的需求和看法各不相同。家属参与基本护理受家庭背景和患者病情的影响。医护人员在实施家属参与基本护理时可以考虑这些发现。
