Princess Máxima Center for Pediatric Oncology, Heidelberglaan 25, 3584 CS, Utrecht, The Netherlands.
Vereniging Kinderkanker Nederland, De Bilt, The Netherlands.
Qual Life Res. 2024 Jan;33(1):145-156. doi: 10.1007/s11136-023-03504-z. Epub 2023 Aug 24.
The KLIK method is a tool to systematically monitor and discuss Health Related Quality of Life (HRQOL) in clinical practice. It has been successfully used in clinical practice in The Netherlands, and has recently been implemented in survivorship care for young adult childhood cancer survivors (CCSs). This study evaluates implementation fidelity and satisfaction of CCSs and healthcare practitioners (HCPs) with the KLIK method in survivorship care.
CCSs' HRQOL was monitored using the KLIK questionnaire (PedsQL generic 18-30 years). In a mixed-methods design, implementation fidelity was based on registrations, and user satisfaction was assessed with evaluation surveys (CCSs) and semi-structured interviews (CCSs, HCPs). Descriptive statistics and qualitative analysis methods were used.
A total of 245 CCSs were eligible for the study. Fidelity was 79.2% (194/245) for registration in the KLIK PROM portal, 89.7% (174/194) for completed KLIK questionnaires, 74.7% (130/174) for its discussion during consultation. Of the eligible CCSs, 17.6% (43/245) completed the study evaluation survey. Five CCSs and HCPs were invited for an interview and participated. CCSs (7.7/10) and HCPs (7.5/10) were satisfied with the KLIK method. Reported facilitators included increased insight into CCSs' functioning, improved preparation before, and communication during consultation, without lengthening consultation duration. Barriers included CCSs not always completing KLIK questionnaires, incomplete content of the KLIK questionnaire, and the need for customization for CCSs with cognitive disabilities.
The KLIK method is a feasible and valuable tool to systematically monitor and discuss HRQOL in survivorship care. Integration of the KLIK method within the organization is essential, with structural support in reminding CCSs to complete questionnaires.
KLIK 方法是一种系统监测和讨论健康相关生活质量（HRQOL）的工具，已在荷兰临床实践中成功应用，并于近期应用于青年成年期癌症幸存者的生存关怀中。本研究旨在评估 KLIK 方法在生存关怀中用于癌症幸存者和医疗保健从业者（HCP）的实施保真度和满意度。
采用 KLIK 问卷（PedsQL 通用 18-30 岁）监测癌症幸存者的 HRQOL。采用混合方法设计，基于注册情况评估实施保真度，采用评估问卷（癌症幸存者）和半结构化访谈（癌症幸存者、HCP）评估用户满意度。采用描述性统计和定性分析方法。
共有 245 例癌症幸存者符合研究条件。KLIK PROM 门户注册的保真度为 79.2%（194/245），完成的 KLIK 问卷的保真度为 89.7%（174/194），在咨询期间讨论的 KLIK 问卷的保真度为 74.7%（130/174）。在符合条件的癌症幸存者中，17.6%（43/245）完成了研究评估调查。5 例癌症幸存者和 HCP 受邀接受访谈并参与其中。癌症幸存者（7.7/10）和 HCP（7.5/10）对 KLIK 方法表示满意。报告的促进因素包括增加对癌症幸存者功能的了解，改善咨询前准备和沟通，而不会延长咨询时间。障碍包括癌症幸存者并非总是完成 KLIK 问卷、KLIK 问卷内容不完整以及需要为认知障碍的癌症幸存者定制。
KLIK 方法是一种系统监测和讨论生存关怀中 HRQOL 的可行且有价值的工具。在组织内整合 KLIK 方法至关重要，需要结构支持以提醒癌症幸存者完成问卷。
