Phillipou Andrea
Orygen, 35 Poplar Rd, Parkville, Melbourne, VIC, 3052, Australia.
Centre for Youth Mental Health, The University of Melbourne, Melbourne, Australia.
J Eat Disord. 2023 Aug 25;11(1):145. doi: 10.1186/s40337-023-00872-2.
Whether or not to define 'terminal anorexia nervosa' has been a hotly debated topic in the eating disorders field recently. Being able to have open scientific debate on important topics such as this is essential for the progress of our field-but needs to be undertaken respectfully, allowing all perspectives to be heard. My personal perspective on this topic comes from being a researcher who sees individuals with anorexia nervosa (AN) across all stages of illness and recovery, as well as having had a loved one die from AN. Although I disagree with the terminology of 'terminal AN' and believe that establishing criteria has the potential to cause harm, I strongly believe in showing compassion to individuals with AN across all illness stages, including those who may wish to seek end-of-life care. This is a complex issue that our field requires guidance on, and we need to work in genuine collaboration with individuals with lived experience of AN to figure out how to appropriately approach end-of-life care when it is warranted.
最近，是否定义“终末期神经性厌食症”一直是饮食失调领域激烈争论的话题。能够就此类重要话题展开公开的科学辩论对我们这个领域的发展至关重要，但需要以尊重的态度进行，让所有观点都能被听到。我对这个话题的个人观点源于我作为一名研究人员，见证了神经性厌食症（AN）患者在疾病和康复的各个阶段的情况，同时也有一位亲人死于神经性厌食症。虽然我不同意“终末期AN”这个术语，并且认为制定标准可能会造成伤害，但我坚信要对各个疾病阶段的神经性厌食症患者表现出同情，包括那些可能希望寻求临终关怀的患者。这是一个复杂的问题，我们这个领域需要相关指导，我们需要与有神经性厌食症亲身经历的人真诚合作，以弄清楚在有必要时如何恰当地提供临终关怀。
