King K, Hanson V
Pediatr Clin North Am. 1986 Oct;33(5):1221-37. doi: 10.1016/s0031-3955(16)36117-x.
The earliest studies dating back to the 1950s have tended to present a more pessimistic view of the psychosocial aspects of JRA patients. More carefully designed studies, however, have shown that these children do not have unique personality characteristics, nor are they necessarily socially maladjusted. Stress may play some role in onset of exacerbation of the disease, although this role is unclear at present. The child's level of cognitive development probably does play a role in the perception of pain and should be considered when undertaking patient education. The long-term psychosocial outcome of JRA patients appears to be quite good, with the majority of patients achieving educational levels at or beyond the level of the population as a whole and with the majority of patients able to support themselves. Future research may provide tools for even better assessment of this and other areas of psychosocial function.
最早可追溯到20世纪50年代的研究往往对青少年类风湿性关节炎(JRA)患者的心理社会方面呈现出更为悲观的看法。然而,设计更为严谨的研究表明,这些儿童并没有独特的个性特征,也不一定存在社会适应不良的情况。压力可能在疾病发作或加重过程中起到一定作用,尽管目前这一作用尚不清楚。儿童的认知发展水平可能确实在疼痛感知中发挥作用,在对患者进行教育时应予以考虑。JRA患者的长期心理社会结果似乎相当良好,大多数患者达到或超过了总体人群的教育水平,并且大多数患者能够自给自足。未来的研究可能会提供工具,以便更好地评估这一领域以及心理社会功能的其他方面。