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敏感的孩子,失调的孩子:以色列多动症儿童的母亲们所面对的污名化、医学化和阐释工作

Sensitive Child, Disturbed Kid: Stigma, Medicalization, and the Interpretive Work of Israeli Mothers of Children with ADHD.

机构信息

School of Education, Ben-Gurion University of the Negev, Be'er Sheva, Israel.

出版信息

Cult Med Psychiatry. 2024 Mar;48(1):198-218. doi: 10.1007/s11013-023-09831-7. Epub 2023 Aug 27.

DOI:10.1007/s11013-023-09831-7
PMID:37634233
Abstract

Attention-deficit/hyperactivity disorder (ADHD) is a rapidly globalizing medical category, and there is a need to attend to the on the-ground processes through which laypeople deploy the ADHD label in different local contexts. Based on in-depth interviews with Israeli mothers of children with ADHD, this article explores how mothers, as lay actors in the social field of diagnosis, interpreted the origins and meanings of their child's 'troubles'. The temporal perspective on mothers' meaning-making processes revealed a progression of four common phases through which mothers revisited their understanding of ADHD, and recast their own responsibilities and moral roles. We found that mothers' self-understanding was crucially impacted by the invisibility of the disability and the fact that diagnosis did not fully relieve them from blame for their children's stigmatizing behavior. While not all mothers accepted the validity of the diagnosis, participating in the medicalization of their child's condition allowed them to reach similar pragmatic and narrative goals. We discuss the cultural and institutional features of the Israeli ADHD landscape that shape mothers' narratives of their children, and their relations with expertise. We point to a culturally unique framing of children with ADHD in Israel as those characterized by emotional vulnerability and risk of social exclusion.

摘要

注意缺陷多动障碍(ADHD)是一个迅速全球化的医学类别,有必要关注到在不同的本地环境中,外行人是如何使用 ADHD 标签的。本文基于对以色列 ADHD 儿童母亲的深入访谈,探讨了母亲作为诊断社会领域的外行参与者,如何解释孩子“问题”的起源和意义。对母亲意义建构过程的时间视角揭示了母亲重新理解 ADHD 的四个常见阶段,以及她们重新塑造自己的责任和道德角色。我们发现,母亲的自我理解受到残疾的不可见性和诊断并没有完全免除她们对孩子污名化行为的责任这一事实的严重影响。虽然并非所有母亲都接受诊断的有效性,但参与孩子病情的医学化治疗使她们能够达到类似的实用和叙述目标。我们讨论了塑造母亲对孩子的叙述以及她们与专业知识关系的以色列 ADHD 环境的文化和制度特征。我们指出,在以色列,患有 ADHD 的儿童被框定为情感脆弱和社会排斥风险较高的独特文化形象。

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