Division of Nursing, KK Women's and Children's Hospital, Singapore City, Singapore.
Alice Lee Centre for Nursing Studies, Yong Loo Lin School of Medicine, National University of Singapore, Singapore City, Singapore.
Fam Process. 2023 Dec;62(4):1408-1422. doi: 10.1111/famp.12930. Epub 2023 Aug 27.
Community-based family-focused interventions can offer support to families of children with chronic health conditions. This review aimed to evaluate the effectiveness of community-based family-focused interventions in improving family functioning, disease knowledge, and child health outcomes among families of children with chronic health conditions. Eight electronic databases (MEDLINE, EMBASE, CINAHL, CENTRAL, PsycINFO, Scopus, Web of Science, and ProQuest Dissertations & Theses Global) and one trial registry (ClinicalTrials.gov) were searched from their dates of inception to October 2022. Meta-analysis was performed under the random-effect model when appropriate otherwise, findings were narratively synthesized. I statistics and Cochran's Q chi-squared test were used to determine heterogeneity. Quality appraisal was conducted by the Cochrane risk of bias tool and the Grades of Recommendation, Assessment, Development, and Evaluation approach at the study and outcome level, respectively. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines guided this review. Eight studies were included in this review. Community-based family-focused interventions were viable methods that could support families of children with chronic health conditions. Family-focused interventions that incorporate guided role-playing exercises for parents and children, psychoeducational components, and elements from relationship-focused interventions could support families more effectively. However, current findings are mostly limited to interventions conducted in patients' homes, and the long-term effect of these interventions cannot be determined. Overall, community-based family-focused interventions have the potential to offer valuable support to families of children with chronic health conditions, and future research could seek to improve the effectiveness of these interventions.
基于社区的以家庭为中心的干预措施可以为患有慢性疾病的儿童的家庭提供支持。本综述旨在评估基于社区的以家庭为中心的干预措施在改善患有慢性疾病的儿童的家庭功能、疾病知识和儿童健康结果方面的有效性。从各数据库建库时间至 2022 年 10 月,我们检索了 8 个电子数据库(MEDLINE、EMBASE、CINAHL、CENTRAL、PsycINFO、Scopus、Web of Science 和 ProQuest Dissertations & Theses Global)和 1 个试验注册库(ClinicalTrials.gov)。当合适时,采用随机效应模型进行荟萃分析,否则采用叙述性综合方法。使用 I ²统计量和 Cochrane Q χ ²检验来确定异质性。使用 Cochrane 偏倚风险工具和 Grades of Recommendation, Assessment, Development, and Evaluation 方法分别在研究和结局水平上对质量进行评估。本综述遵循系统评价和荟萃分析的 Preferred Reporting Items 指南。本综述纳入了 8 项研究。基于社区的以家庭为中心的干预措施是一种可行的方法,可以为患有慢性疾病的儿童的家庭提供支持。以家庭为中心的干预措施,纳入针对父母和儿童的指导角色扮演练习、心理教育内容以及关系为中心的干预措施的要素,可能会更有效地为家庭提供支持。然而,目前的研究结果主要局限于在患者家中进行的干预措施,这些干预措施的长期效果尚无法确定。总的来说,基于社区的以家庭为中心的干预措施有可能为患有慢性疾病的儿童的家庭提供有价值的支持,未来的研究可以寻求提高这些干预措施的有效性。