Institute of Nursing, School of Health Sciences, ZHAW Zurich University of Applied Sciences, Winterthur, Switzerland.
JMIR Res Protoc. 2024 Oct 30;13:e53090. doi: 10.2196/53090.
Burdening health and illness issues such as physical or mental illnesses, accidents, disabilities, and life events such as birth or death influence the health and functioning of families and contribute to the complexity of care and health care costs. Considerable research has confirmed the benefits of a family systems-centered care approach for patients, family caregivers, families, and health care professionals. However, health care professionals face barriers in working with families, such as feeling unprepared. Family systems-centered therapeutic conversations support families' day-to-day coping, resilience, and health. A family systems care unit (FSCU) was recently established as a real-life laboratory at one of the Swiss Universities of Applied Sciences. In this unit, health care professionals offer therapeutic conversations to families and individual family members to support daily symptom management and functioning, soften suffering, and increase health and well-being. These conversations are observed in real time through a 1-way window by other health care professionals, students, and trainees and are recorded with video for research and education. Little is known about how therapeutic conversations contribute to meaningful changes in burdened families and the benefits of vicarious learning in a real-life laboratory setting for family systems care.
In this research program, we aim to deepen our understanding of how therapeutic conversations support families and individuals experiencing burdening health and illness issues and how the FSCU laboratory setting supports the learning of students, clinical trainees, and health care professionals.
Here we apply a transformational action research design, including parallel and subsequent substudies, to advance knowledge and practice in family systems care. Qualitative multiple-case study designs will be used to explore the benefits of therapeutic conversations by analyzing recordings of the therapeutic conversations. The learning processes of students, trainees, and professionals will be investigated with descriptive qualitative study designs based on single and focus group interviews. The data will be analyzed with established coding methods.
Therapeutic conversations have been investigated in 3 single-case studies, each involving a sequence of 3 therapeutic conversation units. Data collection regarding the second research question is planned.
Preliminary results confirm the therapeutic conversations to support families' coping. This renders the FSCU a setting for ethically sensitive research. This program will not only support the health and well-being of families, but also contribute to relieving the financial and workforce burdens in the health and social care system.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/53090.
身体或精神疾病、事故、残疾以及出生或死亡等生命事件带来的负担,影响了家庭的健康和功能,并导致了护理的复杂性和医疗保健成本的增加。大量研究证实,以家庭系统为中心的护理方法对患者、家庭照顾者、家庭和医疗保健专业人员都有益处。然而,医疗保健专业人员在与家庭合作方面面临障碍,例如感到准备不足。以家庭系统为中心的治疗性对话支持家庭的日常应对、适应能力和健康。最近,瑞士应用科学大学之一设立了一个以家庭系统为中心的治疗单元(FSCU),作为现实生活中的实验室。在这个单元中,医疗保健专业人员为家庭和个别家庭成员提供治疗性对话,以支持日常症状管理和功能,减轻痛苦,并提高健康和幸福感。这些对话通过单向窗口实时被其他医疗保健专业人员、学生和学员观察,并通过视频记录下来,用于研究和教育。关于治疗性对话如何促进负担过重的家庭发生有意义的变化,以及在现实生活中的实验室环境中进行替代性学习对家庭系统护理的好处,人们知之甚少。
在这个研究项目中,我们旨在深入了解治疗性对话如何支持正在经历健康和疾病问题负担的家庭和个人,以及 FSCU 实验室环境如何支持学生、临床培训生和医疗保健专业人员的学习。
我们在这里应用了变革性行动研究设计,包括平行和后续的子研究,以推进家庭系统护理方面的知识和实践。将使用定性多案例研究设计来分析治疗性对话的录音,以探讨治疗性对话的益处。将使用基于单个和焦点小组访谈的描述性定性研究设计来研究学生、培训生和专业人员的学习过程。数据将使用既定的编码方法进行分析。
已经对 3 个单案例研究中的治疗性对话进行了研究,每个研究都涉及 3 个治疗性对话单元的序列。计划收集关于第二个研究问题的数据。
初步结果证实了治疗性对话可以支持家庭的应对。这使得 FSCU 成为一个进行伦理敏感研究的场所。该计划不仅将支持家庭的健康和福祉,还将有助于减轻卫生和社会保健系统的经济和劳动力负担。
国际注册报告标识符(IRRID):DERR1-10.2196/53090。