Schaeffer D, Garms-Homolová V
Rehabilitation (Stuttg). 1986 Aug;25(3):128-33.
Experiences of cancer patients' self-help groups can provide impulses for the programming of rehabilitation measures. Exemplary is the information work (information procurement and distribution) of these groups. Problems emanating from disturbed interpersonal relationships and the stigma of the disease are dealt with implicitly rather than explicitly, with only certain patients, however, benefitting selectively from this kind of coping, depending on the stage of the disease and on their social context. The groups succeed in substituting missing or disturbed interpersonal relationships, they sometimes however find it difficult to ward off those aspects of isolation that have arisen with the onset of the disease. These difficulties weigh on other parts of the informal network, especially on the families.
癌症患者自助团体的经验可为康复措施的规划提供动力。这些团体的信息工作(信息获取与传播)便是例证。人际关系困扰和疾病污名化所产生的问题是隐性而非显性处理的,然而,只有某些患者会根据疾病阶段和社会背景有选择地从这种应对方式中受益。这些团体成功地替代了缺失或受干扰的人际关系,但有时却难以抵御疾病发作所带来的孤立方面。这些困难给非正式网络的其他部分,尤其是家庭,带来了压力。