van Buiren M, Häberle H, Mathes L, Schwarz R
Psychosoziale Nachsorgeeinrichtung und Fortbildungsseminar, Chirurgischen Universitätsklinik Heidelberg.
Klin Padiatr. 1998 Jul-Aug;210(4):304-9. doi: 10.1055/s-2008-1043897.
24 families of a child with cancer were questioned for a 3rd time, 8.4 years after initial diagnosis and 6.5 years after family-oriented rehabilitation, before and after which they had been interviewed twice. Subject to this follow-up was the current family situation and the stability of the remarkably positive effect the rehabilitation had shown in the 1st course of the study. Also we hoped to be able to identify problem-families. Generally the family situation seems to have returned to normal, the standardised tests applied showed no significant difference to the general public. Nonetheless some families could be identified as having severe coping difficulties with 2 to 4 members displaying psychosocial problems of a very high degree. Both groups of families profited in the same degree from the rehabilitation; this effect shows great stability for the families coping good, whereas those with coping difficulties worsen considerably, almost always beyond the degree displayed before the rehabilitation. To identify these families quickly and offer them support it seems necessary to establish an out-patient psychosocial follow-up.
对24个患癌儿童家庭进行了第三次询问，时间是在初次诊断8.4年后，以及以家庭为导向的康复治疗6.5年后，在此之前和之后他们都接受过两次访谈。此次随访的内容是当前的家庭状况，以及康复治疗在研究的第一个阶段所显示出的显著积极效果的稳定性。我们还希望能够识别出问题家庭。总体而言，家庭状况似乎已恢复正常，所应用的标准化测试显示与普通公众没有显著差异。尽管如此，仍有一些家庭被认定存在严重的应对困难，有两到四名家庭成员表现出非常严重的社会心理问题。两组家庭从康复治疗中获得的益处程度相同；这种效果对于应对良好的家庭显示出很大的稳定性，而那些有应对困难的家庭则大幅恶化，几乎总是超出康复治疗前的程度。为了快速识别这些家庭并为他们提供支持，建立门诊社会心理随访似乎很有必要。
