Nzinga Jacinta, Oliwa Jacquie, Oluoch Dorothy, Jepkosgei Joyline, Mbuthia Daniel, Boga Mwanamvua, Musitia Peris, Ogola Muthoni, Muinga Naomi, Muraya Kui, Hinga Alex, Kamuya Dorcas, Kelley Maureen, Molyneux Sassy
Health Systems and Research Ethics Department, Kenya Medical Research Institute (KEMRI) Wellcome Trust Research Programme, Nairobi, Kenya.
Population Council, Nairobi, Kenya.
PLOS Glob Public Health. 2023 Aug 29;3(8):e0002116. doi: 10.1371/journal.pgph.0002116. eCollection 2023.
Health policy and systems research (HPSR) is a multi-disciplinary, largely applied field of research aimed at understanding and strengthening the performance of health systems, often with an emphasis on power, policy and equity. The value of embedded and participatory HPSR specifically in facilitating the collection of rich data that is relevant to addressing real-world challenges is increasingly recognised. However, the potential contributions and challenges of HPSR in the context of shocks and crises are not well documented, with a particular gap in the literature being the experiences and coping strategies of the HPSR researchers who are embedded in health systems in resource constrained settings. In this paper, we draw on two sets of group discussions held among a group of approximately 15 HPSR researchers based in Nairobi, Kenya, who were conducting a range of embedded HPSR studies throughout the COVID-19 pandemic. The researchers, including many of the authors, were employed by the KEMRI-Wellcome Trust Research Programme (KWTRP), which is a long-standing multi-disciplinary partnership between the Kenya Medical Research Institute and the Wellcome Trust with a central goal of contributing to national and international health policy and practice. We share our findings in relation to three inter-related themes: 1) Ensuring the continued social value of our HPSR work in the face of changing priorities; 2) Responding to shifting ethical procedures and processes at institutional and national levels; and 3) Protecting our own and front-line colleagues' well-being, including clinical colleagues. Our experiences highlight that in navigating research work and responsibilities to colleagues, patients and participants through the pandemic, many embedded HPSR staff faced difficult emotional and ethical challenges, including heightened forms of moral distress, which may have been better prevented and supported. We draw on our findings and the wider literature to discuss considerations for funders and research leads with an eye to strengthening support for embedded HPSR staff, not only in crises such as the on-going COVID-19 pandemic, but also more generally.
卫生政策与系统研究(HPSR)是一个多学科的、主要为应用研究的领域,旨在理解并加强卫生系统的绩效,通常侧重于权力、政策和公平性。特别是嵌入式和参与式HPSR在促进收集与应对现实世界挑战相关的丰富数据方面的价值,正日益得到认可。然而,HPSR在冲击和危机背景下的潜在贡献和挑战并未得到充分记录,文献中尤其缺乏关于在资源受限环境中嵌入卫生系统的HPSR研究人员的经验和应对策略的内容。在本文中,我们借鉴了在肯尼亚内罗毕的一组约15名HPSR研究人员之间进行的两组小组讨论,这些研究人员在整个新冠疫情期间开展了一系列嵌入式HPSR研究。这些研究人员,包括许多作者,受雇于肯尼亚医学研究协会 - 惠康信托研究项目(KWTRP),该项目是肯尼亚医学研究所和惠康信托之间长期的多学科合作关系,其核心目标是为国家和国际卫生政策及实践做出贡献。我们分享与三个相互关联的主题相关的研究结果:1)面对不断变化的优先事项,确保我们的HPSR工作持续具有社会价值;2)应对机构和国家层面不断变化的伦理程序和流程;3)保护我们自己以及一线同事(包括临床同事)的福祉。我们的经验表明,在疫情期间应对研究工作以及对同事、患者和参与者的责任时,许多嵌入式HPSR工作人员面临着艰难的情感和伦理挑战,包括更严重形式的道德困扰,而这些挑战或许本可以得到更好的预防和支持。我们借鉴研究结果和更广泛的文献,讨论资助者和研究负责人应考虑的因素,着眼于加强对嵌入式HPSR工作人员的支持,不仅在当前新冠疫情这样的危机中,而且在更普遍的情况下。