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评估多中心定性痴呆研究的普遍性:欧洲“思维”(MinD)项目所面临的经验与挑战

Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe.

作者信息

Lim Jennifer N W, Niedderer Kristina, Tournier Isabelle, Almeida Rosa, Harrison Dew, Holthoff-Detto Vjera, Ludden Geke, van Rompay Thomas, van der Voort Mascha, Galansinska Aleksandra, Smith Tina, Lasada Raquel L, Bueno Yolanda A, Druschke Diana, Ziebuhr Berit, Zanasi Michele

机构信息

Faculty of Education, Health and Wellbeing, University of Wolverhampton, Wolverhampton, WV1 1LY, UK.

Manchester School of Art, Manchester Metropolitan University, Manchester, UK.

出版信息

Open Res Eur. 2021 Nov 10;1:64. doi: 10.12688/openreseurope.13700.3. eCollection 2021.

Abstract

: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living.   : Polit and Beck (2010)'s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description. : While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck's strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse  work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.

摘要

研究结果的推广是研究的一个重要方面,也是循证实践的关键。虽然推广在定量研究中很常见,但定性研究中却缺乏可推广性。本文介绍了为痴呆症患者设计(MinD)项目在满足加强关于痴呆症患者生活经历及其参与共同创造设计以增强其日常生活能力的研究结果推广要求方面所面临的经验和挑战。

采用了波利特和贝克(2010年)推广定性研究结果的策略:(1)抽样中的复制;(2)研究的复制;(3)结果的元综合;(4)反思与概念化;(5)沉浸于数据;以及(6)详细描述。

虽然通过复制抽样以在不同和多个背景及环境中获得一个大的、异质的样本;实施合理且稳健的研究;对新出现的主题进行协作式深入分析和解释;以及满足详细描述要求,有可能提高定性证据的可推广性,但由于我们的参与者患有痴呆症这一状况,项目团队在实施波利特和贝克的一些策略时面临挑战。其他面临的挑战包括:团队中的语言和文化多样性;多样的工作和组织程序;以及与研究方法、途径和技术相关的跨学科差异。这些挑战需要在项目开始时由强有力的领导加以识别和解决,以确保顺利完成项目。研究人员与参与者之间的信任以及建立这种信任的时间对于研究的招募和参与至关重要;在涉及痴呆症等状况参与者的研究中,这些因素极为重要。

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