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[针对近畿地区日本神经学会理事会成员的关于神经疾病患者过渡医学的调查问卷]

[Questionnaire for Kinki area Japanese Society of Neurology board members regarding transitional medicine for neurological disease patients].

作者信息

Saito Toshio, Koda Toru, Okuno Tatsusada, Ikeda Akio, Mochizuki Hideki

机构信息

Division of Child Neurology, Department of Neurology, National Hospital Organization Osaka Toneyama Medical Center.

Department of Neurology, Osaka University Graduate School of Medicine.

出版信息

Rinsho Shinkeigaku. 2023 Sep 20;63(9):559-565. doi: 10.5692/clinicalneurol.cn-001884. Epub 2023 Aug 29.

Abstract

In July 2020, The Special Committee for Measures Against Transition from Pediatric to Adult Health Care of the Japanese Society of Neurology was established to address transitional care for patients with childhood-onset neurological disorders. One of the measures used was a questionnaire regarding transitional medicine given to the 129 board members in the Kinki area. Of the 46 respondents, 42 answered that they would "generally examine such patients" or "judge on a case-by-case basis" for patients referred from a pediatric physician. Most of the responses noted "epilepsy" and "neuromuscular disease" as target conditions. Generally, doctors in an adult medical department do not form a relationship with the patient or their family members, different than pediatric department doctors. Furthermore, adult clinical departments typically do not have sufficient knowledge regarding treatment of diseases such as developmental disorders. The present support system for transitional medicine is not sufficient and there is no means for reimbursement. Several issues must be resolved to facilitate a smooth medical transition.

摘要

2020年7月,日本神经学会儿童向成人医疗过渡应对措施特别委员会成立,以解决儿童期起病的神经系统疾病患者的过渡性护理问题。采取的措施之一是向近畿地区的129名委员会成员发放一份关于过渡医学的调查问卷。在46名受访者中,42人回答称,对于儿科医生转诊的患者,他们会“一般检查此类患者”或“逐案判断”。大多数回复指出“癫痫”和“神经肌肉疾病”为目标病症。一般来说,成人医学科室的医生与患者或其家庭成员不建立关系,这与儿科医生不同。此外,成人临床科室通常对发育障碍等疾病的治疗缺乏足够的知识。目前的过渡医学支持系统不足,且没有报销途径。为促进顺利的医疗过渡,必须解决几个问题。

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