开发并评估一种亲属维系量表,并将其应用于识别非裔美国家庭网络中的核心影响者。

Developing and assessing a kin keeping scale with application to identifying central influencers in African American family networks.

作者信息

Allen Caitlin G, McBride Colleen M, Escoffery Cam, Guan Yue, Hood Clarissa, Zaho Jingsong, Brody Gene, An Weihua

机构信息

Medical University of South Carolina, Charleston, SC, USA.

Emory University, Atlanta, GA, USA.

出版信息

J Community Genet. 2023 Dec;14(6):593-603. doi: 10.1007/s12687-023-00665-9. Epub 2023 Aug 31.

Abstract

Promoting family communication about inherited disease risk is an arena in which family systems theory is highly relevant. One family systems' construct that can support promotion of family communication regarding inherited disease risk is the notion of "kin keeping." However, kin keeping and whether it might be capitalized on to encourage family communication about inherited risk has been understudied. The goal of this report was to propose a broadened conceptualization of kin keeping that distinguishes between a structural functional perspective (role conceptualization) and transitional behaviors (skill conceptualization), and to develop and evaluate a scale that would enable this assertion to be tested among a sample of African American community health workers. We developed a scale using four steps: item development using concept analysis and content validity, scale development among a national sample (n = 312), scale evaluation using exploratory factor analysis (n = 52), and scale reduction. We then posed suppositions of associations that would indicate whether the developed kin keeping measure was assessing a specific family role or set of behaviors. Our results included the development of the first quantitative measure of kin keeping (9- and 15-item scales). Model fit for 9-item scale (CFI = 0.97, AFGI = 0.89, RMSEA = 0.09, SMRM = 0.06) and model fit for 15-item scale (CFI = 0.97, AFGI = 0.89, RMSEA = 0.06, SMRM = 0.05). These findings allow us to move toward more rigorous research about the role of kin keeping on information sharing and health decision making. Results also suggest that, contrary to the historical structural functional conceptualization of kin keeping as a role, kin keeping might also be conceptualized as a behavior or set of modifiable behaviors. Ultimately, the kin keeping scale could be used to operationalize kin keeping in various theoretical models and frameworks, guide intervention development to encourage or train for kin keeping behaviors, and test assumptions of whether families vary in the density of kin keeping.

摘要

促进家庭关于遗传疾病风险的沟通是一个家庭系统理论高度相关的领域。一个能够支持促进家庭关于遗传疾病风险沟通的家庭系统构建概念是“亲属维系”。然而,亲属维系以及它是否可以被利用来鼓励家庭关于遗传风险的沟通一直未得到充分研究。本报告的目的是提出一个更宽泛的亲属维系概念化,区分结构功能视角(角色概念化)和过渡行为(技能概念化),并开发和评估一个量表,以便在非裔美国社区卫生工作者样本中检验这一主张。我们通过四个步骤开发了一个量表:使用概念分析和内容效度进行条目开发、在全国样本(n = 312)中进行量表开发、使用探索性因素分析(n = 52)进行量表评估以及量表精简。然后我们提出了关联假设,以表明所开发的亲属维系测量方法是否在评估特定的家庭角色或一组行为。我们的结果包括开发了首个亲属维系的定量测量方法(9项和15项量表)。9项量表的模型拟合度(CFI = 0.97,AFGI = 0.89,RMSEA = 0.09,SMRM = 0.06)以及15项量表的模型拟合度(CFI = 0.97,AFGI = 0.89,RMSEA = 0.06,SMRM = 0.05)。这些发现使我们能够朝着对亲属维系在信息共享和健康决策中的作用进行更严谨研究迈进。结果还表明,与亲属维系作为一种角色的历史结构功能概念化相反,亲属维系也可以被概念化为一种行为或一组可改变的行为。最终,亲属维系量表可用于在各种理论模型和框架中对亲属维系进行操作化,指导干预措施的开发以鼓励或培训亲属维系行为,并检验关于家庭在亲属维系密度上是否存在差异的假设。

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