Espinoza Juan, Tut Maurice, Shah Payal, Kingsbury Paul, Nagaraj Gayathri, Meeker Daniella, Bahroos Neil
Division of General Pediatrics, Department of Pediatrics, Children's Hospital Los Angeles, CA, United States.
Translational Informatics, Information Services Department, Children's Hospital Los Angeles, Los Angeles, CA, United States.
JAMIA Open. 2023 Aug 29;6(3):ooad074. doi: 10.1093/jamiaopen/ooad074. eCollection 2023 Oct.
Patient-reported outcome measures (PROMs) are critical to drive patient-centered care and to understanding patients' perspectives on their health status, quality of life, and the overall effectiveness of the care they receive. PROMs are increasingly being used in clinical and research settings, but the mechanisms to aggregate data from different systems can be cumbersome.
As part of an FDA Real-World Evidence demonstration project, we enriched routine care clinical data from our Cerner electronic health record (EHR) with PROMs collected using REDCap. We used SSIS, sFTP, and the REDCap Application Programming Interface to aggregate both data sources into the Cerner HealtheIntent Population Health Platform.
We successfully built dashboards, reports, and datasets containing both REDCap and EHR data collected prospectively.
This technically straightforward approach using commonly available clinical and research tools can be readily adopted and adapted by others to better integrate PROMs with clinical data sources.
患者报告结局测量（PROMs）对于推动以患者为中心的医疗护理以及理解患者对自身健康状况、生活质量和所接受护理的总体效果的看法至关重要。PROMs在临床和研究环境中越来越多地被使用，但汇总来自不同系统的数据的机制可能很繁琐。
作为美国食品药品监督管理局（FDA）真实世界证据示范项目的一部分，我们使用REDCap收集的患者报告结局测量数据丰富了来自我们的Cerner电子健康记录（EHR）的常规护理临床数据。我们使用SQL Server Integration Services（SSIS）、安全文件传输协议（sFTP）和REDCap应用程序编程接口将这两个数据源汇总到Cerner HealtheIntent人群健康平台中。
我们成功构建了包含前瞻性收集的REDCap和EHR数据的仪表板、报告和数据集。
这种使用常用临床和研究工具的技术上简单直接的方法可以被其他人轻松采用和调整，以更好地将患者报告结局测量与临床数据源整合。
