在研究过程中融入社区声音：关于咨询服务的观点
Integrating community voices in the research continuum: Perspectives on a consultation service.
作者信息
Evans Crystal D, Nanda Joy P, Ouyang Pamela, Bone Lee, Byiringiro Samuel, Lacanienta Cyd, Clark Roger, Weston Christine, Han Hae-Ra, Terkowitz Mia, Bates-Hopkins Barbara, Galiatsatos Panagis, Xu Ashley Jingzhi, Stevens Sarah, Himmelfarb Cheryl R
机构信息
Institute for Clinical and Translational Research (ICTR), Johns Hopkins University, Baltimore, MD, USA.
Community Research Advisory Council, The Johns Hopkins ICTR, Baltimore, MD, USA.
出版信息
J Clin Transl Sci. 2023 Jul 28;7(1):e177. doi: 10.1017/cts.2023.600. eCollection 2023.
The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016-2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009-2017) to 114 (2020-2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.
约翰霍普金斯临床与转化研究所在2009年成立了社区研究咨询委员会（C-RAC），以提供社区参与研究的咨询服务。在2016年至2017年期间，对C-RAC成员和研究人员的咨询经历进行了调查。调查结果和2019年利益相关者会议记录有助于重新设计咨询服务。在新冠疫情期间向虚拟咨询过渡，重新设计包括提高可见度、提前提供咨询材料、扩大成员培训以及有效沟通。观察到咨询次数从28次（2009年至2017年）增加到114次（2020年至2022年）。实施利益相关者-研究人员的意见对于全面和持续的社区参与研究至关重要。
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