Han Hae-Ra, Xu Ashley, Mendez Kyra J W, Okoye Safiyyah, Cudjoe Joycelyn, Bahouth Mona, Reese Melanie, Bone Lee, Dennison-Himmelfarb Cheryl
The Johns Hopkins University School of Nursing, Baltimore, MD, USA.
The Johns Hopkins Institute for Clinical and Translational Research, Community Engagement Program, Baltimore, MD, USA.
Res Involv Engagem. 2021 Mar 30;7(1):19. doi: 10.1186/s40900-021-00261-6.
Community engagement may make research more relevant, translatable, and sustainable, hence improving the possibility of reducing health disparities. The purpose of this study was to explore strategies for community engagement adopted by research teams and identify areas for enhancing engagement in future community engaged research.
The Community Engagement Program of the Johns Hopkins Institute for Clinical and Translational Research hosted a forum to engage researchers and community partners in group discussion to reflect on their diverse past and current experiences in planning, implementing, and evaluating community engagement in health research. A total of 50 researchers, research staff, and community partners participated in five concurrent semi-structured group interviews and a whole group wrap-up session. Group interviews were audiotaped, transcribed verbatim, and analyzed using content analysis.
Four themes with eight subthemes were identified. Main themes included: Community engagement is an ongoing and iterative process; Community partner roles must be well-defined and clearly communicated; Mutual trust and transparency are central to community engagement; and Measuring community outcomes is an evolving area. Relevant subthemes were: engaging community partners in various stages of research; mission-driven vs. "checking the box"; breadth and depth of engagement; roles of community partner; recruitment and selection of community partners; building trust; clear communication for transparency; and conflict in community engaged research.
The findings highlight the benefits and challenges of community engaged research. Enhanced capacity building for community engagement, including training and communication tools for both community and researcher partners, are needed.
社区参与可使研究更具相关性、可转化性和可持续性，从而提高减少健康差距的可能性。本研究的目的是探讨研究团队采用的社区参与策略，并确定在未来社区参与研究中加强参与的领域。
约翰霍普金斯临床与转化研究所以社区参与计划举办了一次论坛，让研究人员和社区合作伙伴参与小组讨论，以反思他们在健康研究中规划、实施和评估社区参与方面过去和当前的不同经历。共有50名研究人员、研究人员和社区合作伙伴参加了五次同步的半结构化小组访谈和一次全体总结会议。小组访谈进行了录音、逐字转录，并采用内容分析法进行分析。
确定了四个主题和八个子主题。主要主题包括：社区参与是一个持续迭代的过程；社区合作伙伴的角色必须明确界定并清晰传达；相互信任和透明度是社区参与的核心；衡量社区成果是一个不断发展的领域。相关子主题包括：让社区合作伙伴参与研究的各个阶段；任务驱动与“走过场”；参与的广度和深度；社区合作伙伴的角色；社区合作伙伴的招募和选择；建立信任；为透明度进行清晰沟通；以及社区参与研究中的冲突。
研究结果突出了社区参与研究的益处和挑战。需要加强社区参与的能力建设，包括为社区和研究人员合作伙伴提供培训和沟通工具。
