Irvine K, Hall R, Taylor L
NSW Health, St Leonards NSW 2065 Australia.
Choicemaker LLC, Princeton New Jersey 08540 USA.
Int J Popul Data Sci. 2019 Nov 29;4(2):1142. doi: 10.23889/ijpds.v4i2.1123. eCollection 2022.
The Centre for Health Record Linkage (CHeReL) was established in 2006 as a dedicated health and human services data linkage facility for two Australian jurisdictions, New South Wales and the geographically-nested Australian Capital Territory. The two jurisdictions have their own Governments and separate Health and Human Service systems.
The primary purpose of the CHeReL is to make linked administrative and routinely collected health data available to researchers and government within relevant regulatory and governance frameworks. The CHeReL's data governance and technical operations draw on international best practice and have been refined by learnings from other data linkage centres.
Over twelve years of operation, more than 2,320 unique investigators from 140 institutions have used the CHeReL, producing 615 publications in peer-reviewed literature. A robust pipeline of new development is expected to further amplify the use of linked data for cutting edge medical research and support a vision of data-informed policy and data-driven government services.
健康记录链接中心(CHeReL)成立于2006年,是一个专门为澳大利亚的两个司法管辖区——新南威尔士州和地理上嵌套的澳大利亚首都直辖区——提供健康和人类服务数据链接的机构。这两个司法管辖区有各自的政府以及独立的卫生和人类服务系统。
CHeReL的主要目的是在相关监管和治理框架内,为研究人员和政府提供经过链接的行政和常规收集的健康数据。CHeReL的数据治理和技术运营借鉴了国际最佳实践,并通过其他数据链接中心的经验教训进行了完善。
在运营的十二年中,来自140个机构的2320多名不同的研究人员使用了CHeReL,在同行评审文献中发表了615篇论文。预计一系列强劲的新发展将进一步扩大链接数据在前沿医学研究中的应用,并支持以数据为依据的政策和数据驱动的政府服务愿景。