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定义和促进儿科肺部健康:公平的家庭和社区伙伴关系。

Defining and Promoting Pediatric Pulmonary Health: Equitable Family and Community Partnerships.

机构信息

Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland.

Department of Pediatrics, University of Missouri-Kansas City School of Medicine and Children's Mercy Kansas City, Kansas City, Missouri.

出版信息

Pediatrics. 2023 Sep 1;152(Suppl 2). doi: 10.1542/peds.2023-062292G.

DOI:10.1542/peds.2023-062292G
PMID:37656028
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10484323/
Abstract

Optimizing pulmonary health across the lifespan begins from the earliest stages of childhood and requires a partnership between the family, pulmonologist, and pediatrician to achieve equitable outcomes. The Community Pediatrics session of the Defining and Promoting Pediatric Pulmonary Health workshop weaved together 4 community-based pillars with 4 research principles to set an agenda for future pediatric pulmonary research in optimizing lung and sleep health for children and adolescents. To address diversity, equity, and inclusion, both research proposals and workforce must purposefully include a diverse set of participants that reflects the community served, in addition to embracing nontraditional, community-based sites of care and social determinants of health. To foster inclusive, exploratory, and innovative research, studies must be centered on community priorities, with findings applied to all members of the community, particularly those in historically marginalized and minoritized groups. Research teams should also foster meaningful partnerships with community primary care and family members from study conceptualization. To achieve these goals, implementation and dissemination science should be expanded in pediatric pulmonary research, along with the development of rapid mechanisms to disseminate best practices to community-based clinicians. To build cross-disciplinary collaboration and training, community-academic partnerships, family research partnerships, and integrated research networks are necessary. With research supported by community pillars built on authentic partnerships and guided by inclusive principles, pediatric lung and sleep health can be optimized for all children and adolescents across the full lifespan in the community in which they live and thrive.

摘要

优化全生命周期的肺部健康始于儿童的早期阶段,需要家庭、肺科医生和儿科医生之间的合作,以实现公平的结果。我们在“定义和促进儿科肺部健康”研讨会的社区儿科会议部分,将 4 个基于社区的支柱与 4 个研究原则结合起来,为未来儿科肺部研究设定了优化儿童和青少年肺部和睡眠健康的议程。为了解决多样性、公平性和包容性问题,研究提案和劳动力都必须有目的地包括多样化的参与者,这些参与者反映了所服务的社区,同时还必须接受非传统的、基于社区的护理场所和健康的社会决定因素。为了促进包容性、探索性和创新性研究,研究必须以社区的优先事项为中心,研究结果应用于社区的所有成员,特别是那些历史上处于边缘地位和少数群体的成员。研究团队还应在研究概念化阶段与社区初级保健和家庭成员建立有意义的伙伴关系。为了实现这些目标,应在儿科肺部研究中扩大实施和传播科学,并制定快速机制,向基于社区的临床医生传播最佳实践。为了建立跨学科合作和培训,需要建立社区-学术伙伴关系、家庭研究伙伴关系和综合研究网络。通过建立在真实伙伴关系基础上并以包容性原则为指导的社区支柱支持的研究,可以优化所有儿童和青少年在他们生活和茁壮成长的社区中的全生命周期的肺部和睡眠健康。

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