Glinac Alma, Sinanovic Selma, Glinac Lejla, Matovic Lejla
Department of Physical Medicine and Rehabilitation, University Clinical Center Tuzla, Tuzla, Bosnia and Herzegovina.
Faculty of Education and Rehabilitation, University of Tuzla, Tuzla, Bosnia and Herzegovina.
Sudan J Paediatr. 2023;23(1):60-67. doi: 10.24911/SJP.106-1600718620.
The aim of the study was to examine the impact of the quality of life of children with cerebral palsy (CP) on the quality of life of mothers. A total of 122 subjects participated in the study. The general quality of life assessment of paediatric subjects PedsQL 4.0 Generic Scale and the specific PedsQL 3.0 Module Cerebral Palsy Version 3.0 were used to assess the quality of life of children with CP, and the quality of life of mothers was assessed with the PedsQL 2.0 Family Impact Mode Questionnaire. In the present study, the quality of life of mothers is influenced by the physical and social functioning of the child, while the impact of emotional functioning has not been proven. The specific difficulties faced by children with CP, which have a statistically significant effect on the overall quality of life of the mother, are present in the domains: daily activities, mobility and balance and nutrition. The assessment of the quality of life of mothers and children with CP should be an integral part of the clinical assessment, as this will enable professionals to participate more successfully in providing professional assistance in the form of services, therapeutic approaches and prevention programs.
该研究的目的是考察脑瘫(CP)患儿的生活质量对母亲生活质量的影响。共有122名受试者参与了该研究。采用儿童生活质量评估通用量表PedsQL 4.0和特定的PedsQL 3.0脑瘫模块第3.0版来评估CP患儿的生活质量,并用PedsQL 2.0家庭影响模式问卷评估母亲的生活质量。在本研究中,母亲的生活质量受孩子身体和社会功能的影响,而情感功能的影响尚未得到证实。CP患儿面临的特定困难,在日常活动、移动与平衡以及营养等方面对母亲的总体生活质量有统计学上的显著影响。对CP患儿及其母亲生活质量的评估应成为临床评估的一个组成部分,因为这将使专业人员能够更成功地参与以服务、治疗方法和预防计划等形式提供专业援助。