Madi Dina, Abi Abdallah Doumit Myrna, Hallal Mohammad, Moubarak Maya M
Hariri School of Nursing, American University of Beirut, Beirut, Lebanon.
Biomedical Engineering Program, Maroun Semaan Faculty of Engineering and Architecture, Faculty of Medicine, American University of Beirut, Beirut, Lebanon.
BMC Nurs. 2023 Sep 4;22(1):301. doi: 10.1186/s12912-023-01461-z.
Considerable improvements in the prognosis of pediatric cancer patients have been achieved over recent decades due to advances in treatment. Nevertheless, as the most common and distressing health issue for pediatrics with cancer, cancer-related pain is still a significant hurdle that impedes patients' journey to recovery, compromises their quality of life, and delays the positive outcome and effectiveness of their treatments.
Taking into consideration that acceptability studies are imperative for the design, evaluation, and implementation of healthcare interventions, this study aims to explore pediatric oncology patients' readiness to use a mobile health application that emphasizes social assistance and peer support in addition to conventional pain management methods.
This study followed the Qualitative description approach. Twelve participants were chosen based on purposive sampling and maximum variation sampling. Interviews were analyzed using the conventional content analysis.
Analysis of the interviews revealed four major categories: (A) The need for connectedness; (B) An innovative way to connect yet fearful; (C) A 3D approach; (D) Fears of the unfamiliar.
This study is the first in Lebanon and the region to undertake an initiative towards introducing technology for pain assessment and management of children with cancer through a dedicated digital platform. The study results attested to the acceptability and potential utilization of this platform by children with cancer.
Nurses need to be trained to play an essential role in teaching children with cancer about the significance of social support and assisting them to establish their social support network. Children with cancer are encouraged to voice out their need for help. Our proposed application can create an enabling environment to harness the power of social support and provide children with cancer the opportunity to connect on a deeper level in a supportive and pity-free space.
由于治疗方法的进步，近几十年来儿科癌症患者的预后有了显著改善。然而，作为患有癌症的儿科患者最常见且令人痛苦的健康问题，癌症相关疼痛仍然是一个重大障碍，它阻碍了患者的康复进程，损害了他们的生活质量，并延迟了治疗的积极效果和有效性。
考虑到可接受性研究对于医疗保健干预措施的设计、评估和实施至关重要，本研究旨在探讨儿科肿瘤患者对使用一款移动健康应用程序的意愿，该应用程序除了传统的疼痛管理方法外，还强调社会援助和同伴支持。
本研究采用定性描述方法。基于目的抽样和最大变异抽样选择了12名参与者。使用传统内容分析法对访谈进行分析。
访谈分析揭示了四个主要类别：（A）联系的需求；（B）一种创新的联系方式但心存恐惧；（C）三维方法；（D）对不熟悉事物的恐惧。
本研究是黎巴嫩及该地区首个通过专门的数字平台引入技术用于癌症儿童疼痛评估和管理的倡议。研究结果证明了该平台对于癌症儿童的可接受性和潜在利用率。
护士需要接受培训，以便在教导癌症儿童社会支持的重要性以及协助他们建立社会支持网络方面发挥重要作用。鼓励癌症儿童说出他们的求助需求。我们提出的应用程序可以创造一个有利环境，利用社会支持的力量，为癌症儿童提供在一个支持性且无怜悯的空间中进行更深入联系的机会。
