Department of Health, TX A&M University, College Station, TX, USA.
Department of Research, Craig Hospital, Englewood, CO, USA.
Disabil Rehabil. 2024 Aug;46(16):3724-3732. doi: 10.1080/09638288.2023.2254227. Epub 2023 Sep 4.
To determine if commonly used caregiver burden assessments, Zarit Burden Interview(ZBI), Caregiver Reaction Assessment Scale(CRA), Caregiver Burden Inventory(CBI), and Caregiver Strain Index(CSI), provide clinicians and researchers with a comprehensive understanding of the burden that informal caregivers face.
Meaningful concepts, identified from these assessments, were linked to the most appropriate and precise International Classification of Functioning, Disability, and Health (ICF) code by experienced coders using a validated standardized ICF linking technique. Descriptive statistics were used to examine and compare the comprehensiveness of each assessment.
A total of 120 meaningful concepts identified from 83 items, represented three of the four ICF domains: 1) (27%), 2) (29%), and 3) (5%). Eleven percent of concepts were too vague to be coded, and 25% were clearly defined but not included in the ICF. Six of the 17 epidemiologic factors of caregiver burden were covered by the assessments combined.
Linking commonly used caregiver burden assessments to the ICF and comparing the results to the epidemiologic factors of caregiver burden suggests that the assessments may not be capturing many of the factors associated with caregiver burden. This, in turn, may be hindering the development and implementation of effective caregiver education and interventions.
确定常用的照顾者负担评估工具，如 Zarit 负担访谈（ZBI）、照顾者反应评估量表（CRA）、照顾者负担量表（CBI）和照顾者负担指数（CSI），是否能让临床医生和研究人员全面了解非正式照顾者所面临的负担。
有经验的编码员使用经过验证的标准化国际功能、残疾和健康分类（ICF）链接技术，将这些评估中确定的有意义的概念与最合适和最准确的 ICF 代码联系起来。使用描述性统计来检查和比较每个评估的全面性。
从 83 个项目中确定了 120 个有意义的概念，涵盖了 ICF 的四个领域中的三个：1）身体功能（27%）、2）身体结构（29%）和 3）活动和参与（5%）。11%的概念过于模糊无法编码，25%的概念虽然定义明确但未包含在 ICF 中。这六项评估涵盖了 caregiver burden 的 17 个流行病学因素中的 6 个。
将常用的 caregiver burden 评估与 ICF 联系起来，并将结果与 caregiver burden 的流行病学因素进行比较，表明这些评估可能没有捕捉到与 caregiver burden 相关的许多因素。这反过来可能会阻碍有效的 caregiver 教育和干预措施的制定和实施。
