Grov Ellen Karine, Wilde-Larsson Bodil, Kjøs Bente Ødegård, Hov Reidun
Faculty of Health Sciences, Department of Nursing and Health Promotion, Oslo Metropolitan University, Oslo, 0130, Norway.
Department of Health Science, Discipline of Nursing Science, Karlstad University, Karlstad, Sweden.
BMC Palliat Care. 2025 Jul 12;24(1):198. doi: 10.1186/s12904-025-01844-w.
Caregivers take on several tasks to support the patients during their disease trajectory. The price caregivers pay might have impact on their health, schedule, necessity of support from others, economic situation, and quality of life. Therefore, health care personnel need assessment tools to capture the caregivers' reaction and situation. Clinical practice is characterized as a busy setting and long assessment tools might be time-consuming to complete.
This study aims to present a short form from an original (long) version of The Caregiver Reaction Assessment (24 items) and to show how these tools correlate in a repeated measures design with three assessment points. Demographics and clinical variables are analysed by means of descriptive statistics. To assess possible sex differences for the long version of The Caregiver Reaction Assessment, the short version of it, and a single item assessing global quality of life, we performed independent sample t-test and Pearson's correlation analysis.
Sufficient correlation was shown between the long version (24 items), the short version (6 items), and the single item measuring global quality of life. We present how assessment of the caregivers' reaction and situation can be managed by means of a stepwise approach with one single item on quality of life as the first step, a short form tool on caregiver reaction as the next, and finally a long version of a reputable tool, The Caregiver Reaction Assessment, as the third step.
In this study we have shown how different tools correlate. We suggest these tools to be used in a three-step approach to assess caregivers' reaction and situation.
在患者的疾病进程中，照料者承担着多项任务来支持患者。照料者付出的代价可能会对他们的健康、日程安排、是否需要他人支持、经济状况以及生活质量产生影响。因此，医护人员需要评估工具来了解照料者的反应和状况。临床实践的特点是工作繁忙，而较长的评估工具可能需要花费大量时间才能完成。
本研究旨在从原始的（较长的）《照料者反应评估》（24项）版本中提炼出一个简短版本，并展示这些工具在具有三个评估点的重复测量设计中的相关性。通过描述性统计分析人口统计学和临床变量。为了评估《照料者反应评估》长版本、其简短版本以及一项评估总体生活质量的单项之间可能存在的性别差异，我们进行了独立样本t检验和Pearson相关性分析。
长版本（24项）、简短版本（6项）以及测量总体生活质量的单项之间显示出足够的相关性。我们展示了如何通过一种逐步的方法来管理对照料者反应和状况的评估，第一步是以一项关于生活质量的单项作为开始，接下来是以一个关于照料者反应的简短工具，最后是以一个知名工具《照料者反应评估》的长版本作为第三步。
在本研究中，我们展示了不同工具之间的相关性。我们建议采用这三种工具按三步法来评估照料者的反应和状况。
