Isik Elif, Mack Gardner, Sockrider Marianna M, Fredland Nina M, Shegog Ross
Nelda C. Stark College of Nursing, Texas Woman's University, Houston, Texas, USA.
Pediatric Pulmonology, Texas Children's Hospital, Houston, Texas, USA.
Pediatr Allergy Immunol Pulmonol. 2023 Sep;36(3):69-89. doi: 10.1089/ped.2023.0071. Epub 2023 Sep 6.
Asthma is a common chronic disease and a substantial public health problem for children, adolescents, and adults. Adolescence, a period of increased independence and striving for autonomy, is an opportune time for youth transitioning to adulthood to assume more responsibility for their own asthma self-management. However, accurate measures of adolescent asthma outcomes are limited. The purpose of this systematic review is to identify self-reported asthma measures currently available in the empirical literature focused on adolescent populations. Search terms were based on the National Library of Medical Subject Headings and followed the Preferred Reporting Items for Systematic Reviews and Meta-Analysis guidelines. Databases searched included CINAHL, Nursing Allied Health Prevention, Medline, ProQuest, and PubMed. Included studies were peer reviewed and published in English between 2010 and 2022. All studies reported on asthma measures for adolescents between 10 and 19 years old. Nineteen studies were included, comprising 15 experimental and 4 quasi-experimental. This review revealed the following asthma measure domains: asthma knowledge, self-efficacy, attitudes, self-care, self-regulation, symptom prevention and management, medication adherence, asthma disease control, symptoms, and quality of life (QOL) for evaluating psychosocial, behavioral, clinical, and QOL outcomes. This review revealed the necessity of developing a comprehensive measure to assess the asthma self-management behaviors of adolescents. A comprehensive tool related to adolescent asthma self-management behavior would enhance the assessment and evaluation of adolescent asthma self-management behaviors and extend the science and clinical practice around adolescent self-management. Present measures for asthma self-management behavior for adolescents are limited; therefore, developing a valid and reliable measure is necessary not only to assess adolescents' asthma self-management behavior outcomes but also to identify and evaluate the essential components to include in educational interventions for adolescent self-management.
哮喘是一种常见的慢性疾病，对儿童、青少年和成年人来说是一个重大的公共卫生问题。青春期是一个独立性增强且追求自主性的时期，对于向成年过渡的青少年而言，这是一个承担更多自身哮喘自我管理责任的适当时机。然而，青少年哮喘结局的准确衡量指标有限。本系统评价的目的是确定实证文献中目前可获得的、针对青少年人群的自我报告哮喘衡量指标。检索词基于美国国立医学图书馆主题词表，并遵循系统评价与Meta分析优先报告条目指南。检索的数据库包括护理学与健康预防数据库、医学索引数据库、医学期刊数据库、ProQuest数据库和PubMed数据库。纳入的研究经过同行评审，且于2010年至2022年期间以英文发表。所有研究均报告了10至19岁青少年的哮喘衡量指标。共纳入19项研究，其中15项为实验性研究，4项为准实验性研究。本评价揭示了以下哮喘衡量指标领域：哮喘知识、自我效能感、态度、自我护理、自我调节、症状预防与管理、药物依从性、哮喘疾病控制、症状以及生活质量（QOL），用于评估心理社会、行为、临床和生活质量结局。本评价揭示了开发一种综合衡量指标以评估青少年哮喘自我管理行为的必要性。一个与青少年哮喘自我管理行为相关的综合工具将加强对青少年哮喘自我管理行为的评估与评价，并扩展围绕青少年自我管理的科学与临床实践。目前针对青少年哮喘自我管理行为的衡量指标有限；因此，开发一种有效且可靠的衡量指标不仅对于评估青少年哮喘自我管理行为结局是必要的，而且对于识别和评估青少年自我管理教育干预中应包含的关键组成部分也是必要的。
