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“让我告诉你,我认为回声语言是我儿子身份的一部分”:从父母的角度探索回声语言作为神经多样性的一种表现。

'Let me tell you, I see echolalia as being a part of my son's identity': Exploring echolalia as an expression of neurodiversity from a parental perspective.

机构信息

The University of Melbourne, Australia.

出版信息

Autism. 2024 May;28(5):1245-1257. doi: 10.1177/13623613231195795. Epub 2023 Sep 6.

DOI:10.1177/13623613231195795
PMID:37674319
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11067407/
Abstract

Echolalia is a commonly found speech and language condition in autistic children. Children with echolalia repeat words and phrases they previously hear in place of proving a non-repetitive response. In research and when visiting speech and language services, one of the common goals is to modify these repetitions so that these children may, more socially, engage with their surrounding environment. In our research, we identified that not all parents want their children's echolalia to be modified. Some parents want their child to be able to enjoy echolalia and others don't want anyone to intervene because they see it as something that makes their child unique and being unique is something to be celebrated. We believe that there might be a way for speech and language services who want to modify echolalia and the parents in our study who do not want their child's echolalia to be modified, to be able to exist side-by-side.

摘要

儿童自闭症中常出现一种言语语言现象即回声语言。患儿重复他们之前听到的单词和短语,而不是给出非重复的回应。在研究和言语语言服务中,常见的目标之一就是修改这些重复的话语,这样患儿就可以更加自然地与周围环境互动。在我们的研究中,我们发现并不是所有的家长都希望孩子的回声语言被修改。有些家长希望孩子能够享受回声语言,而另一些家长则不希望任何人干预,因为他们认为这是孩子独特的表现,而独特性是值得庆祝的。我们相信,对于那些希望修改回声语言的言语语言服务提供者和我们研究中不希望孩子的回声语言被修改的家长来说,也许有一种方法可以让他们并存。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e70d/11067407/8eb2a21ae15a/10.1177_13623613231195795-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e70d/11067407/8eb2a21ae15a/10.1177_13623613231195795-fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e70d/11067407/8eb2a21ae15a/10.1177_13623613231195795-fig1.jpg

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本文引用的文献

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"My Autism Is My Own": Autistic Identity and Intersectionality in the School Context.“我的自闭症属于我自己”:学校环境中的自闭症身份认同与交叉性
Autism Adulthood. 2022 Dec 1;4(4):315-327. doi: 10.1089/aut.2021.0087. Epub 2022 Dec 13.
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Echolalia as defined by parent communication partners.由家长沟通伙伴所定义的模仿言语。
Autism Dev Lang Impair. 2023 Jan 25;8:23969415231151846. doi: 10.1177/23969415231151846. eCollection 2023 Jan-Dec.
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How can psychologists meet the needs of autistic adults?心理学家如何满足自闭症成年人的需求?
Autism. 2024 Feb;28(2):520-522. doi: 10.1177/13623613221147346. Epub 2023 Jan 13.
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Autism Dev Lang Impair. 2022 Apr 21;7:23969415221091928. doi: 10.1177/23969415221091928. eCollection 2022 Jan-Dec.
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