Jung Yeojung, Yeom Hyun-E, Lee Na-Ri
Department of Nursing, Jeonbuk National University Hospital, Jeonju, Korea.
Department of Nursing, Chungnam National University, Daejeon, Korea.
J Hosp Palliat Care. 2021 Mar 1;24(1):46-55. doi: 10.14475/jhpc.2021.24.1.46.
This pilot study aimed to examine the influence of death counseling on perceptions, preparedness, and anxiety regarding death and dying among family caregivers of hospice patients.
Death counseling developed based on the SPIKES model was provided to 37 family caregivers in a hospice and palliative care unit. Perceptions, preparedness, and anxiety regarding death were assessed with a self-administered structured questionnaire, and participants' scores before and after counseling were compared using the paired t-test.
Significant changes were found in perceptions, preparedness, and anxiety regarding death after counseling. Compared to before counseling, the scores for perceptions of death (t=-4.90, P<0.001) and preparedness for death and dying (t=-16.23, P<0.001) improved, while anxiety (t=3.72, P=0.001) decreased after counseling. Some changes were also found in the types of support that family caregivers needed to prepare for the death of their family members in the hospice care unit.
The findings demonstrate that death counseling could help family caregivers prepare for the death of their loved ones. Hospice and palliative care providers should play a key role in supporting family caregivers of hospice patients by developing strategies for counseling.
本试点研究旨在探讨死亡咨询对临终关怀患者家庭照顾者在死亡及濒死观念、准备情况和焦虑方面的影响。
基于SPIKES模型开展的死亡咨询服务被提供给一家临终关怀与姑息治疗病房的37名家庭照顾者。通过一份自填式结构化问卷评估他们对死亡的观念、准备情况和焦虑程度，并使用配对t检验比较咨询前后参与者的得分。
咨询后，在对死亡的观念、准备情况和焦虑方面发现了显著变化。与咨询前相比，死亡观念得分（t = -4.90，P < 0.001）和对死亡及濒死的准备情况得分（t = -16.23，P < 0.001）有所提高，而咨询后焦虑得分（t = 3.72，P = 0.001）降低。在临终关怀病房中，家庭照顾者为家人死亡做准备所需的支持类型也有一些变化。
研究结果表明，死亡咨询有助于家庭照顾者为亲人的死亡做好准备。临终关怀与姑息治疗提供者应通过制定咨询策略，在支持临终关怀患者家庭照顾者方面发挥关键作用。
