Nadash Pamela, Qu Shan, Tell Eileen J
University of Massachusetts Boston, Boston, MA, USA.
ET Consulting, LLC, Belmont, MA, USA.
Health Promot Pract. 2025 Jan;26(1):96-103. doi: 10.1177/15248399231196854. Epub 2023 Sep 11.
This study aimed to understand the perspectives of key stakeholders regarding strategies for better supporting culturally and ethnically diverse family caregivers, aiming to incorporate them into the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Advisory Council's proposed National Strategy. The Strategy, published in 2022, identified priority actions to support the growing population of people providing unpaid care to people of all ages with disabilities, with a goal of improving the health and well-being of both the family caregiver and the person receiving support. Researchers conducted extensive outreach to purposively diverse stakeholder organizations, using six stakeholder strategy sessions with representatives from 42 groups in December 2020 to identify preliminary themes. During July-October 2021, 17 key informant interviews and 16 stakeholder listening sessions were held, involving 103 different organizations. Qualitative data analysis using an inductive approach was used to identify key themes. A significant issue for diverse caregivers is widespread lack of self-identification as caregivers, which is tied to a lack of awareness of potentially helpful services and supports; culturally appropriate outreach is critical to ensure access to services, as well as access to centralized resources and funding for community- and faith-based organizations. A community health worker model was recommended. Tailored activities, involving trusted community- and faith-based groups, as well as investments in caregiver- and culturally-specific supports, are critical for reaching the diverse family caregivers who most need supports. Raising awareness of caregiving among and taking advantage of the expertise of professionals working with diverse communities is also crucial.
本研究旨在了解关键利益相关者对更好地支持文化和种族多元化家庭照顾者策略的看法，旨在将这些看法纳入“认可、协助、纳入、支持和参与”（RAISE）家庭照顾者咨询委员会提出的国家战略。该战略于2022年发布，确定了优先行动，以支持为所有年龄段的残疾人提供无偿照顾的人数不断增加，目标是改善家庭照顾者和接受支持者的健康与福祉。研究人员对目标明确的多元化利益相关者组织进行了广泛宣传，在2020年12月与42个团体的代表举行了六次利益相关者战略会议，以确定初步主题。在2021年7月至10月期间，举行了17次关键信息访谈和16次利益相关者倾听会议，涉及103个不同组织。采用归纳法进行定性数据分析以确定关键主题。对于多元化的照顾者来说，一个重要问题是普遍缺乏将自己视为照顾者的自我认同，这与对潜在有用服务和支持的认识不足有关；文化上适当的宣传对于确保获得服务以及获得社区和基于信仰的组织的集中资源和资金至关重要。建议采用社区卫生工作者模式。开展量身定制的活动，包括值得信赖的社区和基于信仰的团体，以及对照顾者和特定文化支持的投资，对于接触最需要支持的多元化家庭照顾者至关重要。提高与多元化社区合作的专业人员对照顾工作的认识并利用他们的专业知识也至关重要。
