Department of Neurology, University of Rochester, 265 Crittenden Boulevard, CU 420694, Rochester, NY, 14642, USA.
School of Medicine, University of Rochester, Rochester, NY, USA.
J Relig Health. 2023 Dec;62(6):4222-4243. doi: 10.1007/s10943-023-01913-5. Epub 2023 Sep 13.
Despite recognition that spiritual concerns contribute to caregiver burden, little is known about spirituality, spiritual well-being, and spiritual distress in Parkinson's disease caregivers. In this scoping review of the literature through October 2022, we searched PubMed, PsychINFO, Embase, and CINAHL. From an initial pool of 328 studies, 14 were included. Caregiver factors (e.g., depression, age) and patient factors (e.g., faith, motor function) affected caregiver spirituality and spiritual well-being. Caregivers experienced loss of meaning, existential guilt, and loneliness, and coped through acquiescence, cultural beliefs, prayer, and gratitude. Future research should focus on the specific spiritual needs of Parkinson's disease caregivers and interventions to address them.
尽管人们认识到精神问题会增加照顾者的负担，但对于帕金森病照顾者的精神信仰、精神健康和精神困扰知之甚少。在这项截至 2022 年 10 月的文献范围综述中，我们检索了 PubMed、PsychINFO、Embase 和 CINAHL。从最初的 328 项研究中，纳入了 14 项研究。照顾者的因素（例如，抑郁、年龄）和患者的因素（例如，信仰、运动功能）影响了照顾者的精神信仰和精神健康。照顾者经历了意义的丧失、存在内疚和孤独，并通过默许、文化信仰、祈祷和感恩来应对。未来的研究应关注帕金森病照顾者的具体精神需求和解决这些需求的干预措施。
