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对认知障碍老年研究参与者进行决策能力评估的应用

Application of a Decisional Capacity Assessment for Older Research Participants with Cognitive Impairment.

作者信息

Xu Ling, Fields Noelle L, Westmore Megan R, Daniel Kathryn M, Troutman Brooke A

机构信息

School of Social Work, The University of Texas at Arlington, Arlington, TX 76010, USA.

College of Nursing and Health Innovation, The University of Texas at Arlington, Arlington, TX 76010, USA.

出版信息

Behav Sci (Basel). 2023 Sep 14;13(9):767. doi: 10.3390/bs13090767.

DOI:10.3390/bs13090767
PMID:37754045
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10525220/
Abstract

Decisional capacity assessment is important for older adult participants who have cognitive impairment. This paper reports the implementation of the University of California, San Diego Brief Assessment of Capacity to Consent (UBACC) and its potential for practice and research. Nine of the 10 items remained to use except for adapting the last item. Approximately 130 older adults with cognitive impairment completed the UBACC screening. Item-by-item descriptive statistics, exploratory factor analysis (EFA), group comparisons of each item, as well as total sum scores of the UBACC were conducted. Results showed that the items that were most often answered correctly included item #10 (participant will be paid), item #4 (study is voluntary), and item #5 (can withdraw at any time). Conversely, the items that were most often answered incorrectly included item #9 (not any benefit potentially), item #7 (potential risk or discomfort), and item #6 (tasks during participation). Respondents with mild cognitive impairment had higher correct answer rates than those with advanced cognitive impairment. The UBACC screening tool has relative utility for older participants with cognitive impairment.

摘要

决策能力评估对于患有认知障碍的老年参与者而言至关重要。本文报告了加利福尼亚大学圣地亚哥分校同意能力简要评估法(UBACC)的实施情况及其在实践和研究中的潜力。除了对最后一项进行调整外,10项中的9项仍可使用。约130名患有认知障碍的老年人完成了UBACC筛查。进行了逐项描述性统计、探索性因素分析(EFA)、各项目的组间比较以及UBACC的总分统计。结果显示,回答正确率最高的项目包括第10项(参与者将获得报酬)、第4项(研究是自愿的)和第5项(可随时退出)。相反,回答错误率最高的项目包括第9项(无潜在益处)、第7项(潜在风险或不适)和第6项(参与期间的任务)。轻度认知障碍的受访者比重度认知障碍的受访者有更高的正确回答率。UBACC筛查工具对于患有认知障碍的老年参与者具有相对实用性。

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本文引用的文献

1
Reminiscence and Digital Storytelling to Improve the Social and Emotional Well-Being of Older Adults With Alzheimer's Disease and Related Dementias: Protocol for a Mixed Methods Study Design and a Randomized Controlled Trial.通过回忆和数字叙事改善阿尔茨海默病及相关痴呆症老年人的社会和情感福祉:混合方法研究设计与随机对照试验方案
JMIR Res Protoc. 2023 Sep 7;12:e49752. doi: 10.2196/49752.
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Psychometric Properties of a Decisional Capacity Screening Tool for Individuals Contemplating Participation in Alzheimer's Disease Research.用于考虑参与阿尔茨海默病研究的个体的决策能力筛查工具的心理测量特性。
J Alzheimers Dis. 2015;46(1):1-9. doi: 10.3233/JAD-142559.
3
Including individuals with memory impairment in the research process: the importance of scales and response categories used in surveys.在研究过程中纳入有记忆障碍的个体:调查中使用的量表和反应类别之重要性。
J Empir Res Hum Res Ethics. 2012 Apr;7(2):70-9. doi: 10.1525/jer.2012.7.2.70.
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Assessment of Capacity to Consent to Treatment: Challenges, the "ACCT" Approach, Future Directions.对治疗同意能力的评估:挑战、“ACCT”方法及未来方向。
Clin Gerontol. 2007 Mar 3;31(3):37-66. doi: 10.1080/07317110802072140.
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A new brief instrument for assessing decisional capacity for clinical research.一种用于评估临床研究决策能力的新型简易工具。
Arch Gen Psychiatry. 2007 Aug;64(8):966-74. doi: 10.1001/archpsyc.64.8.966.
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The AD8: a brief informant interview to detect dementia.AD8:一种用于检测痴呆症的简短 informant 访谈。 (注:这里 informant 直译为“提供信息者”,在医学语境中可理解为访谈对象等,具体含义需结合上下文确定)
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The development and piloting of a capacity assessment tool.
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