Rhee Hyekyun, Batek Lindsay, Rew Lynn, Tumiel-Berhalter Laurene
School of Nursing, University of Texas at Austin, 1710 Red River St., Austin, TX 78712, USA.
School of Nursing, University of Rochester, 601 Elmwood Ave, Rochester, NY 14642, USA.
Children (Basel). 2023 Sep 5;10(9):1510. doi: 10.3390/children10091510.
Adolescence marks a significant transition from pediatric to adult healthcare, and parents play critical roles in supporting their adolescents with chronic conditions through this process. However, little is known about parents' experiences, perceptions, and needs during this healthcare transition. This qualitative study explores the experiences and perceptions of parents regarding the care transition of their 16-17-year-old adolescents with asthma. Nineteen mothers participated in either a focus group or individual interviews, and a content analysis was conducted on the data. Parents expressed negative emotions and various concerns about their teens' transition readiness and asthma management. A need for early transition training for both adolescents and parents was discussed. Overall, the complexity and challenges associated with the healthcare transition of adolescents with asthma take a toll on parents, particularly when their teens are not adequately prepared to manage asthma independently. Parents need appropriate anticipatory guidance regarding the transition and skills to navigate changing roles and negotiate asthma care responsibilities with their teens. Timely interventions and support strategies for both adolescents and parents are needed to ensure the successful healthcare transition of adolescents with asthma.
青春期标志着从儿科医疗向成人医疗的重大转变，在此过程中，父母在支持患有慢性病的青少年方面发挥着关键作用。然而，对于父母在这一医疗转变过程中的经历、看法和需求，我们知之甚少。这项定性研究探讨了父母对于其16至17岁患哮喘青少年护理转变的经历和看法。19位母亲参与了焦点小组讨论或个人访谈，并对数据进行了内容分析。父母对其子女的转变准备情况和哮喘管理表达了负面情绪及各种担忧。讨论了为青少年和父母开展早期转变培训的必要性。总体而言，哮喘青少年医疗转变带来的复杂性和挑战让父母倍感压力，尤其是当他们的孩子没有充分准备好独立管理哮喘时。父母需要有关转变的适当预期指导以及应对角色变化和与孩子协商哮喘护理责任的技能。需要为青少年和父母提供及时的干预措施和支持策略，以确保哮喘青少年医疗转变的成功。
