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J Med Philos. 2024 Jan 13;49(1):85-101. doi: 10.1093/jmp/jhad044.
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Embodiment and personal identity in dementia.痴呆症中的体现和人格同一性。
Med Health Care Philos. 2020 Dec;23(4):665-676. doi: 10.1007/s11019-020-09973-0.
2
"All is not lost"-Rethinking the nature of memory and the self in dementia.“一切都未失去”-重新思考痴呆症中记忆和自我的本质。
Ageing Res Rev. 2019 Sep;54:100932. doi: 10.1016/j.arr.2019.100932. Epub 2019 Jun 22.
3
Musical Features and Affective Responses to Personalized Playlists in People With Probable Dementia.音乐特征与个性化播放列表对疑似痴呆患者的情感反应
Am J Alzheimers Dis Other Demen. 2019 Jun;34(4):247-253. doi: 10.1177/1533317518808011. Epub 2018 Oct 21.
4
Music and Dementia: Individual Differences in Response to Personalized Playlists.音乐与痴呆症:个性化播放列表反应的个体差异。
J Alzheimers Dis. 2018;64(3):933-941. doi: 10.3233/JAD-180084.
5
Relationships Between Confabulations and Mental Time Travel in Alzheimer's Disease.阿尔茨海默病中虚构症与心理时间旅行之间的关系。
J Neuropsychiatry Clin Neurosci. 2018 Fall;30(4):302-309. doi: 10.1176/appi.neuropsych.17110266. Epub 2018 May 30.
6
The Persistence of the Self over Time in Mild Cognitive Impairment and Alzheimer's Disease.轻度认知障碍和阿尔茨海默病中自我在时间上的持续性
Front Psychol. 2018 Feb 20;9:94. doi: 10.3389/fpsyg.2018.00094. eCollection 2018.
7
Transcending the Tragedy Discourse of Dementia: An Ethical Imperative for Promoting Selfhood, Meaningful Relationships, and Well-Being.超越痴呆症的悲剧话语:促进自我认同、有意义的人际关系和幸福的伦理要求。
AMA J Ethics. 2017 Jul 1;19(7):693-703. doi: 10.1001/journalofethics.2017.19.7.msoc1-1707.
8
Communicating with people living with dementia who are nonverbal: The creation of Adaptive Interaction.与非言语表达的痴呆症患者沟通:适应性互动的创建。
PLoS One. 2017 Aug 1;12(8):e0180395. doi: 10.1371/journal.pone.0180395. eCollection 2017.
9
Stigma and Self-Stigma in Addiction.成瘾中的耻辱感与自我耻辱感
J Bioeth Inq. 2017 Jun;14(2):275-286. doi: 10.1007/s11673-017-9784-y. Epub 2017 May 3.
10
Does Social Interaction Matter Psychological Well-Being in Persons With Dementia?社交互动对痴呆症患者的心理健康重要吗?
Am J Alzheimers Dis Other Demen. 2017 Jun;32(4):207-212. doi: 10.1177/1533317517704301. Epub 2017 Apr 18.

关系型照护框架:在以患者为中心的照护中促进连续性或自我认同的维持。

The Relational Care Framework: Promoting Continuity or Maintenance of Selfhood in Person-Centered Care.

机构信息

Caring Futures Institute, College of Nursing and Health Sciences, Flinders University, Adelaide, Australia.

Plunkett Center for Ethics, Australian Catholic University, Sydney, Australia.

出版信息

J Med Philos. 2024 Jan 13;49(1):85-101. doi: 10.1093/jmp/jhad044.

DOI:10.1093/jmp/jhad044
PMID:37776569
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10787111/
Abstract

We argue that contemporary conceptualizations of "persons" have failed to achieve the moral goals of "person-centred care" (PCC, a model of dementia care developed by Tom Kitwood) and that they are detrimental to those receiving care, their families, and practitioners of care. We draw a distinction between personhood and selfhood, pointing out that continuity or maintenance of the latter is what is really at stake in dementia care. We then demonstrate how our conceptualization, which is one that privileges the lived experiences of people with dementia, and understands selfhood as formed relationally in connection with carers and the care environment, best captures Kitwood's original idea. This conceptualization is also flexible enough to be applicable to the practice of caring for people at different stages of their dementia. Application of this conceptualization into PCC will best promote the well-being of people with dementia, while also encouraging respect and dignity in the care environment.

摘要

我们认为,当代对“人”的概念化未能实现“以人(person)为本的关怀”(PCC,一种由汤姆·基特伍德开发的痴呆症护理模式)的道德目标,并且对接受护理的人、他们的家人和护理人员都有不利影响。我们区分了人格和自我,指出在痴呆症护理中,真正处于危险之中的是后者的连续性或维持。然后,我们展示了我们的概念化,它优先考虑痴呆症患者的生活体验,并将自我理解为与护理人员和护理环境建立关系而形成的,这最能捕捉到基特伍德的最初想法。这种概念化也足够灵活,可以适用于不同痴呆阶段的人的护理实践。将这种概念化应用于 PCC 将最能促进痴呆症患者的福祉,同时也鼓励在护理环境中尊重和尊严。