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肉芽肿性小叶性乳腺炎女性的疾病经历。一项定性访谈研究。

The Disease Experience of Women with Granulomatous Lobular Mastitis. A Qualitative Interview Study.

作者信息

Wang Yan Ting, Tang Ya Qin, Xu Jia Yuan, Bian Xue Mei

机构信息

School of Nursing, Zhejiang Chinese Medical University, Hangzhou, People's Republic of China.

Department of Nursing, The First Affiliated Hospital of Zhejiang Chinese Medical University, Hangzhou, People's Republic of China.

出版信息

J Inflamm Res. 2023 Sep 28;16:4347-4361. doi: 10.2147/JIR.S419347. eCollection 2023.

Abstract

BACKGROUND

The incidence of granulomatous lobular mastitis (GLM) is increasing year by year, and the breast wounds of women patients with GLM can develop into abscesses, fistulas, sinuses, and sometimes orange-like degeneration similar to malignant tumors, which seriously affects the quality of life of women patients with GLM. In China, breast wounds in women patients with GLM have not been better managed. Therefore, the purpose of this study is to explore the disease experience of women patients with GLM, to provide a basis for the development of precise intervention and support strategies for women patients with GLM, and to further improve the quality of nursing management and enrich the research types of GLM.

METHODS

In this study, 10 cases of GLM women patients from a tertiary hospital in Hangzhou, Zhejiang Province were selected by purposive sampling. After obtaining the informed consent of GLM women patients, semi-structured interviews were conducted with GLM women patients using the interview outline to collect qualitative data. The interview was recorded, transcribed verbatim in the local language, and then translated into English, and the content analysis method was used to analyze the data. The Consolidated Criteria for Reporting Qualitative Research (CORE-Q) checklist follows the report 's findings.

RESULTS

Our study identified six themes: (a) Perception of the disease, (b) Emotional discomfort (c) Variety of changes (d) Lack of specific skills (e) Coping strategies adopted to rebuild health, (f) Expectation.

CONCLUSION

The experience of women with GLM is characterized by diversity and specificity. After experiencing physical trauma, most patients use support systems to change negative attitudes and rebuild physical and mental health. Family, hospital and society should be fully linked to strengthen the prevention of GLM and the popularization of nursing management knowledge; nurses should provide targeted nursing services. Nursing leaders should improve the medical security system, broaden the medical channels, and reduce the pain experience and pressure of patients.

摘要

背景

肉芽肿性小叶性乳腺炎(GLM)的发病率逐年上升,GLM女性患者的乳房伤口可发展为脓肿、瘘管、窦道,有时还会出现类似恶性肿瘤的橘皮样变性,严重影响GLM女性患者的生活质量。在我国,GLM女性患者的乳房伤口尚未得到较好的处理。因此,本研究旨在探讨GLM女性患者的疾病体验,为制定GLM女性患者精准干预和支持策略提供依据,进一步提高护理管理质量,丰富GLM的研究类型。

方法

本研究采用目的抽样法,选取浙江省杭州市某三级医院的10例GLM女性患者。在获得GLM女性患者知情同意后,使用访谈提纲对GLM女性患者进行半结构式访谈,收集定性资料。访谈进行录音,用当地语言逐字转录,然后翻译成英文,采用内容分析法对数据进行分析。定性研究报告统一标准(CORE-Q)清单遵循报告结果。

结果

我们的研究确定了六个主题:(a)对疾病的认知,(b)情绪不适,(c)多种变化,(d)缺乏特定技能,(e)为重建健康而采取的应对策略,(f)期望。

结论

GLM女性患者的体验具有多样性和特异性。在经历身体创伤后,大多数患者利用支持系统改变消极态度,重建身心健康。家庭、医院和社会应充分联动,加强GLM的预防和护理管理知识的普及;护士应提供有针对性的护理服务。护理管理者应完善医疗保障体系,拓宽医疗渠道,减轻患者的痛苦体验和压力。

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