School of Nursing, Zhejiang Chinese Medical University, Zhejiang, China; Sir Run Run Shaw Hospital, Zhejiang University School of Medicine, Zhejiang, China.
School of Nursing, Zhejiang Chinese Medical University, Zhejiang, China; Zhejiang Hospital, Zhejiang, China.
Asian Nurs Res (Korean Soc Nurs Sci). 2020 Oct;14(4):196-205. doi: 10.1016/j.anr.2020.07.006. Epub 2020 Aug 24.
Body image changes are common among patients living with inflammatory bowel disease (IBD) because of the illness and related treatments. Currently, there is little known about how those patients experience and perceive their altered body image in the literature. The aim of this study was to explore the experiences of body image changes in patients with IBD in China and to describe how those changes influence patients' perception of body and self.
This study used a descriptive qualitative approach. A total of 16 participants from three tertiary hospitals in southeast China were recruited through purposive sampling combined with maximum variation strategy. Data were collected through semistructured interviews and analyzed using conventional content analysis method.
The following six themes were extracted: (1) "being a constrained person," (2) "being a flawed person," (3) "being a disliked person," (4) "being an alienated person," (5) "being a reconciled person," and (6) "being a blessed person."
With the diagnosis of IBD and its side effects of treatments, patients' life changed significantly and they were struggling to reinterpret their body and self. As a result, negative self-evaluations and/or positive self-evaluations towards themselves generated. Further studies are required to explore the underlying mechanism and related influencing factors about how those different images were produced.
由于疾病和相关治疗,患有炎症性肠病(IBD)的患者的身体形象经常会发生变化。目前,文献中对于这些患者如何体验和感知他们改变了的身体形象知之甚少。本研究的目的是探讨中国 IBD 患者身体形象改变的体验,并描述这些变化如何影响患者对身体和自我的感知。
本研究采用描述性定性方法。通过目的性抽样和最大变异策略,从中国东南部的三家三级医院共招募了 16 名参与者。通过半结构化访谈收集数据,并使用常规内容分析法进行分析。
得出以下六个主题:(1)“成为一个受限的人”;(2)“成为一个有缺陷的人”;(3)“成为一个不受欢迎的人”;(4)“成为一个被疏远的人”;(5)“成为一个和解的人”;(6)“成为一个有福的人”。
随着 IBD 的诊断和治疗的副作用,患者的生活发生了重大变化,他们正在努力重新解释自己的身体和自我。因此,对自己产生了负面的自我评价和/或正面的自我评价。需要进一步研究以探讨产生这些不同形象的潜在机制和相关影响因素。