CEReSS-EA 3279, Research Center in Health Services and Quality of Life Aix Marseille University, Dermatology Department, University Hospital Timone, Assistance Publique-Hôpitaux de Marseille, Marseille, France.
INSERM Infinity U1291, Université de Toulouse et CHU, Toulouse, France.
J Eur Acad Dermatol Venereol. 2023 Oct;37 Suppl 7:17-24. doi: 10.1111/jdv.18916.
The journey of patients with skin diseases through healthcare has been scarcely investigated.
To analyse the journey of people with skin diseases in the different healthcare environment in Europe.
This multinational, cross-sectional, European study was conducted on a representative sample of the adult general population of 27 European countries. The prevalence of the most frequent skin diseases was determined. Information was collected on the patient journey from the first medical consultation to the diagnosis, and the reasons for not consulting a healthcare professional.
On a total of 44,689 individuals, 30.3% reported to have consulted a dermatologist during the previous 2 years. Participants consulted mainly for mole control or skin cancer screening (22.3%), followed by chronic skin diseases (16.2%). The diagnoses of acne, atopic dermatitis, psoriasis and rosacea were made most frequently by a dermatologist, while fungal skin infections were diagnosed more often by a general practitioner (GP), and sexually transmitted diseases (STD) by other specialists. The diagnosis was not always definitive at the first consultation, in particular for STD. The percentage of people who did not consult a healthcare professional for their skin disease was particularly high for acne (36.4%), alopecia (44.7%) and fungal infection (30.0%). Moreover, 17.7% of respondents with psoriasis did not consult. A high percentage of participants with alopecia thought that the disease was not worrying, while patients with psoriasis often answered that they were able to manage the disease since they had already consulted a doctor. Many patients with acne (41.1%) and fungal infection (48.2%) thought that they were able to handle the disease by themselves.
The analysis of the self-reported medical journey of patients with common skin diseases may allow to understand the unmet needs of patients, thus improving outcomes and reducing expenses.
皮肤病患者的医疗之旅尚未得到充分研究。
分析欧洲不同医疗环境下皮肤病患者的就医历程。
本研究为一项多中心、欧洲横断面研究,在 27 个欧洲国家的代表性成年人群体中进行。确定了最常见皮肤病的患病率。收集了从首次就诊到确诊的患者就医历程信息,以及未就诊的原因。
在总共 44689 名参与者中,30.3%的人在过去 2 年内曾就诊皮肤科医生。参与者主要因痣或皮肤癌筛查(22.3%)、慢性皮肤病(16.2%)就诊。痤疮、特应性皮炎、银屑病和酒渣鼻的诊断主要由皮肤科医生做出,而真菌感染则更多地由全科医生(GP)做出,性传播疾病(STD)则由其他专科医生做出。首次就诊时并非总是能明确诊断,特别是 STD。因痤疮(36.4%)、脱发(44.7%)和真菌感染(30.0%)而未就诊的患者比例特别高。此外,17.7%的银屑病患者未就诊。许多脱发患者(41.1%)和真菌感染患者(48.2%)认为他们可以自行处理疾病。许多痤疮(41.1%)和真菌感染(48.2%)患者认为自己能够自行处理疾病。
对常见皮肤病患者自述的就医历程进行分析,可能有助于了解患者的未满足需求,从而改善治疗效果并降低医疗费用。