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患者和医疗保健提供者对美国脂溢性皮炎诊断途径的看法。

Patient and Healthcare Provider Perspectives on the Pathway to Diagnosis of Seborrheic Dermatitis in the United States.

机构信息

Chicago Medical School, Rosalind Franklin University of Medicine and Science, North Chicago, IL, USA.

Center for Medical Dermatology + Immunology Research, Chicago, IL, USA.

出版信息

Adv Ther. 2024 Dec;41(12):4433-4445. doi: 10.1007/s12325-024-02986-8. Epub 2024 Sep 30.

DOI:10.1007/s12325-024-02986-8
PMID:39347927
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11550289/
Abstract

INTRODUCTION

Seborrheic dermatitis (SD) is a common, chronic inflammatory skin condition associated with significant impact on quality of life, yet its etiology and pathophysiology are not well understood. With significant impact on patients' quality of life, understanding the diagnostic pathway from the perspectives of patient and healthcare providers (HCPs) is crucial.

METHODS

An online survey was developed and administered in conjunction with the Harris Poll to gain insight into patient and HCP perspectives about SD diagnosis and management from December 2021 to January 2022.

RESULTS

Most patients were unaware of SD before their diagnosis (71%) and experienced difficulty finding information online (56%). Patients delayed seeking medical attention for SD by an average of 3.6 years, with most patients feeling their symptoms did not require medical attention (63%), a perception that HCPs correctly anticipated. Additionally, most patients (58%) reported embarrassment discussing their SD symptoms with HCPs, a factor HCPs underestimated. HCPs also underestimated the percentage of patients self-reporting moderate-severity SD. Patients preferred dermatology HCPs for SD treatment (79%), and reported visiting an average of 2.3 different HCPs, with 75% of patients seeing more than one provider.

CONCLUSION

These insights highlight the complexities in the diagnostic and management pathways of SD and underscore the need for a more nuanced understanding and approach in addressing the condition. Infographic available for this article. INFOGRAPHIC.

摘要

简介

脂溢性皮炎(SD)是一种常见的慢性炎症性皮肤病,对生活质量有重大影响,但病因和病理生理学尚未完全了解。鉴于其对患者生活质量的重大影响,了解从患者和医疗保健提供者(HCP)的角度来看的诊断途径至关重要。

方法

我们开发了一项在线调查,并与哈里斯民意调查公司(Harris Poll)合作,于 2021 年 12 月至 2022 年 1 月期间深入了解患者和 HCP 对 SD 诊断和管理的看法。

结果

大多数患者在确诊前不知道 SD(71%),并且在网上很难找到相关信息(56%)。患者平均延迟 3.6 年寻求 SD 的医疗关注,大多数患者认为他们的症状不需要医疗关注(63%),HCP 准确地预料到了这一点。此外,大多数患者(58%)表示在与 HCP 讨论他们的 SD 症状时感到尴尬,这是 HCP 低估的一个因素。HCP 也低估了自我报告中度至重度 SD 的患者比例。患者更喜欢皮肤科 HCP 治疗 SD(79%),并报告平均看了 2.3 个不同的 HCP,75%的患者看了不止一个提供者。

结论

这些观点突显了 SD 诊断和管理途径的复杂性,并强调需要更细致入微的理解和方法来解决该病症。本文提供了相关信息图。信息图。

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本文引用的文献

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在 EADV 皮肤病负担研究中,从欧洲普通人群的代表性样本中观察皮肤病患者从首次就诊到确诊的过程。
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An Overview of the Diagnosis and Management of Seborrheic Dermatitis.脂溢性皮炎的诊断与管理概述
Clin Cosmet Investig Dermatol. 2022 Aug 6;15:1537-1548. doi: 10.2147/CCID.S284671. eCollection 2022.
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