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“人们并不常想听我讲述自己的生活”:在跨学科歌曲创作项目中失语症患者的叙事体验。

"It's not often that people want to hear me talk about my life": Storytelling experiences of people with aphasia in an interdisciplinary songwriting project.

机构信息

Department of Communication Sciences and Disorders, Central Michigan University, Mt Pleasant, MI, USA.

Department of Communication Sciences and Disorders, University of Wisconsin - Eau Claire, Eau Claire, WI, USA.

出版信息

Int J Speech Lang Pathol. 2024 Oct;26(5):737-749. doi: 10.1080/17549507.2023.2251724. Epub 2023 Oct 8.

DOI:10.1080/17549507.2023.2251724
PMID:37807482
Abstract

PURPOSE

Storytelling is an integral part of human life, providing opportunities for social closeness, relationship development, and identity exploration. Having aphasia can disrupt the ability to convey stories across a variety of settings. Structured songwriting frameworks may provide people with aphasia an opportunity to successfully engage in this medium for storytelling.

METHOD

Three individuals with aphasia participated in a structured songwriting intervention modified to support individuals with aphasia. Each participant-songwriter co-constructed three songs about their life in collaboration with an interdisciplinary team. Data about the songwriting process were collected via individual semi-structured qualitative interview and analysed using interpretative phenomenological analysis to identify superordinate themes and subthemes.

RESULT

The overarching superordinate theme related to the process itself as a catalyst that occurred as a result of participating in a songwriting intervention modified for individuals with aphasia. Three subthemes were identified: (a) relationship-centred experience, (b) engagement in meaningful activities, and (c) identity exploration.

CONCLUSION

Songwriting may provide meaningful opportunities for people with aphasia to experience the power of sharing stories about themselves. Key components of this experience aligned with the core elements of the positive psychology PERMA (Positive Emotion, Engagement, Relationships, Meaning, and Accomplishments) framework. Findings support incorporating storytelling through songwriting into the rehabilitation journey for individuals with aphasia.

摘要

目的

讲故事是人类生活的一个组成部分,它提供了社交亲近、关系发展和身份探索的机会。患有失语症会破坏在各种环境下传达故事的能力。有组织的歌曲创作框架可能为失语症患者提供了成功参与这种讲故事媒介的机会。

方法

三名失语症患者参与了一项经过修改以支持失语症患者的结构化歌曲创作干预。每位参与者-词曲作者都与跨学科团队合作,共同创作了三首关于他们生活的歌曲。通过对个人进行半结构化定性访谈收集有关歌曲创作过程的数据,并使用解释性现象学分析进行分析,以确定上位主题和子主题。

结果

总体上位主题与作为结果发生的参与为失语症患者修改的歌曲创作干预过程有关。确定了三个子主题:(a)以关系为中心的体验,(b)参与有意义的活动,和(c)身份探索。

结论

歌曲创作可能为失语症患者提供有意义的机会,让他们体验分享自己故事的力量。这种体验的关键组成部分与积极心理学 PERMA(积极情绪、参与、关系、意义和成就)框架的核心要素一致。研究结果支持将通过歌曲创作进行的故事讲述纳入失语症患者的康复之旅。

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