Jawed Aysha, Graham Heather, Smith Jennifer
Charlotte R. Bloomberg Children's Center, Baltimore, MD, United States.
Department of Pediatric Social Work, Charlotte R. Bloomberg Children's Center, Baltimore, MD, United States.
Front Digit Health. 2023 Sep 27;5:1222187. doi: 10.3389/fdgth.2023.1222187. eCollection 2023.
Autism continues to be a leading neurodevelopmental disorder across adult and pediatric populations that transcends racial, ethnic, age, and socioeconomic groups worldwide. Autism care and treatment also exerts immense costs on the healthcare system and lost productivity which are partly attributed to the existing resource limitations globally. Organizations, campaigns, and policies exist worldwide in increasing equity and accessibility of resources and services to individuals with autism. In the context of our digital era, a wealth of information is also more readily available on autism through electronic communication including social media platforms. As YouTube, Twitter and Facebook are ever-growing and among the leading social media platforms in contemporary times, examination of content covered on autism across these communication mediums is timely and warranted. This review consolidates findings from 32 sources on the sources, formats, and nature of content covered on YouTube, Twitter, and Facebook pertaining to a wealth of dimensions surrounding autism. Strengths and limitations of the studies and endeavors are presented. Implications for future campaign development, health equity, health policy, neurodiversity, and patient care are also delineated. Lastly, recommendations for future research and practice are discussed which present directions for tapping into the potential of YouTube, Twitter, and Facebook as health communication mediums across the ever-changing autism landscape.
自闭症仍然是一种主要的神经发育障碍，在全球范围内的成人和儿童群体中普遍存在，不受种族、民族、年龄和社会经济群体的限制。自闭症的护理和治疗也给医疗系统带来了巨大成本，并导致生产力损失，部分原因是全球范围内现有的资源限制。世界各地都有各种组织、活动和政策，致力于提高自闭症患者获得资源和服务的公平性和可及性。在我们这个数字时代，通过包括社交媒体平台在内的电子通信，也更容易获取大量有关自闭症的信息。由于YouTube、Twitter和Facebook等平台不断发展，是当代领先的社交媒体平台之一，因此及时且有必要对这些传播媒介上有关自闭症的内容进行审视。本综述汇总了32个来源的研究结果，涉及YouTube、Twitter和Facebook上关于自闭症多个维度的内容来源、形式和性质。同时介绍了这些研究和相关工作的优势与局限性。还阐述了对未来活动开展、健康公平、卫生政策、神经多样性和患者护理的影响。最后，讨论了对未来研究和实践的建议，为挖掘YouTube、Twitter和Facebook在不断变化的自闭症领域作为健康传播媒介的潜力指明了方向。
