Kumari Poonam, Kalyani Vasantha C, Sharma Maneesh, Singh Vivek, Prashar Anil Kumar, Patiyal Nidhi
College of Nursing, All India Institute of Medical Sciences, Rishikesh, Uttarakhand, India.
Professor cum Principal, College of Nursing, All India Institute of Medical Sciences, Deoghar, Jharkhand, India.
J Educ Health Promot. 2023 Aug 31;12:270. doi: 10.4103/jehp.jehp_1584_22. eCollection 2023.
Congenital talipes equinovarus (CTEV) is a congenital musculoskeletal deformity, which further leads to abnormal alignment of the feet in children. The aim of the present study is to assess perception and practice and explore lived experiences on the use of corrective braces among parents of children diagnosed with clubfoot.
A mixed method study approach with convergent parallel research design was used on 100 parents of children with clubfoot. For the quantitative strand, a total enumerative sampling technique was used to collect the data using self-structured tools-a 5-point Likert scale on perception and a checklist on practice at the clubfoot clinic of a selected tertiary care hospital, Rishikesh. For the qualitative strand, a purposive sampling technique was used to conduct the in-depth interview until data saturation from 17 participants using a semi-structured questionnaire. Analysis was done using the SPSS 23.0 software, descriptive statistics with the use of frequency %, whereas for correlation, Pearson's correlation coefficient was used.
The mean age of participants was 31 years with a mean score of 30.54 ± 4.97. Among parents, 93% showed positive perception with a mean score of 67.16 ± 6.23 and 64% followed appropriate practice with a mean score of 12.44 ± 1.45. Coefficient correlation showed a statistically weak positive correlation between perception and practice ( < 0.001). The lived experiences of parents were reflected under six main themes, i.e., "personal experiences with wearing braces for correction," "encounters and barriers," "effects on one's social and personal life," "perceived answers," "any other previous practice," and "awareness about clubfoot."
Present study concluded that parents had a positive perception and appropriate practice on the use of corrective braces, but there were a few issues such as relapse due to non-adherence, financial burden, and traveling distance, and noticeably more, which need to be addressed. Parental information is a very essential component that should be addressed by all treating physicians and nursing officers before starting treatment for clubfoot.
先天性马蹄内翻足（CTEV）是一种先天性肌肉骨骼畸形，会进一步导致儿童足部排列异常。本研究的目的是评估认知与实践情况，并探索被诊断为马蹄内翻足的儿童家长使用矫正支具的生活体验。
对100名马蹄内翻足患儿的家长采用了融合平行研究设计的混合方法研究。在定量研究方面，采用完全枚举抽样技术，使用自行设计的工具——在瑞诗凯诗一家选定的三级护理医院的马蹄内翻足诊所，用5点李克特量表评估认知情况，用检查表评估实践情况，来收集数据。在定性研究方面，采用目的抽样技术，使用半结构化问卷对17名参与者进行深入访谈，直至数据饱和。使用SPSS 23.0软件进行分析，采用频率百分比进行描述性统计，而对于相关性分析，则使用皮尔逊相关系数。
参与者的平均年龄为31岁，平均得分为30.54±4.97。在家长中，93%表现出积极认知，平均得分为67.16±6.23，64%遵循了适当的实践，平均得分为12.44±1.45。系数相关性显示认知与实践之间存在统计学上较弱的正相关（<0.001）。家长的生活体验体现在六个主要主题下，即“佩戴矫正支具的个人经历”“遭遇与障碍”“对社交和个人生活的影响”“感知到的答案”“任何其他先前的做法”以及“对马蹄内翻足的认识”。
本研究得出结论，家长对使用矫正支具具有积极认知和适当实践，但存在一些问题，如因不依从导致复发、经济负担和路途距离等，而且明显还有更多问题需要解决。家长教育是所有治疗医生和护理人员在开始治疗马蹄内翻足之前都应关注的非常重要的组成部分。
