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即时信息透明化:肿瘤临床医生和患者的看法。

Information transparency with immediate release: Oncology clinician and patient perceptions.

机构信息

University of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.

University of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.

出版信息

Am J Surg. 2024 Jan;227:165-174. doi: 10.1016/j.amjsurg.2023.10.015. Epub 2023 Oct 5.

DOI:10.1016/j.amjsurg.2023.10.015
PMID:37863801
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11112620/
Abstract

INTRODUCTION

As part of the 21st Century Cures Act (April 2021), electronic health information (EHI) must be immediately released to patients. In this study, we sought to evaluate clinician and patient perceptions regarding this immediate release.

METHODS

After surveying 33 clinicians and 30 patients, semi-structured interviews were conducted with a subset of the initial sample, comprising 8 clinicians and 12 patients. Open-ended questions explored clinicians' and patients' perceptions of immediate release of EHI and how they adjusted to this change.

RESULTS

Ten themes were identified: Interpreting Results, Strategies for Patient Interaction, Patient Experiences, Communication Strategies, Provider Limitations, Provider Experiences, Health Information Interfaces, Barriers to Patient Understanding, Types of Results, and Changes due to Immediate Release. Interviews demonstrated differences in perceived patient distress and comprehension, emphasizing the impersonal nature of electronic release and necessity for therapeutic clinician-patient communication.

CONCLUSIONS

Clinicians and patients have unique insights on the role of immediate release. Understanding these perspectives will help improve communication and develop patient-centered tools (glossaries, summary pages, additional resources) to aid patient understanding of complex medical information.

摘要

简介

作为 21 世纪治愈法案(2021 年 4 月)的一部分,电子健康信息(EHI)必须立即向患者发布。在这项研究中,我们试图评估临床医生和患者对这种即时发布的看法。

方法

在对 33 名临床医生和 30 名患者进行调查后,对初始样本的一部分进行了半结构式访谈,包括 8 名临床医生和 12 名患者。开放式问题探讨了临床医生和患者对 EHI 即时发布的看法,以及他们如何适应这一变化。

结果

确定了 10 个主题:解释结果、与患者互动的策略、患者体验、沟通策略、提供者限制、提供者体验、健康信息界面、患者理解障碍、结果类型以及即时发布带来的变化。访谈表明,患者的痛苦和理解程度存在不同的看法,强调了电子发布的非个人性质和临床医生与患者进行治疗性沟通的必要性。

结论

临床医生和患者对即时发布的作用有独特的见解。了解这些观点将有助于改善沟通,并开发以患者为中心的工具(词汇表、摘要页、附加资源),以帮助患者理解复杂的医疗信息。

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