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即时发布的健康信息解读:为乳腺肿瘤学患者医学教育提供信息

Interpretation of immediately released health information: Informing patient medical education in breast oncology.

作者信息

O'Brien Elizabeth, Ludwigson Abigail, Vemuru Sudheer, Higgins Madeline, Hampanda Karen, Adams Monica, Wolverton Dulcy, Sams Sharon, Taft Nancy, Miles Randy, Lin Chen-Tan, Cumbler Ethan, Tevis Sarah

机构信息

University of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.

University of Colorado School of Medicine, Department of Surgery, 12631 East 17th Ave. 6th Floor, Aurora, CO, 80045, USA.

出版信息

Am J Surg. 2025 Jan;239:115853. doi: 10.1016/j.amjsurg.2024.115853. Epub 2024 Jul 18.

DOI:10.1016/j.amjsurg.2024.115853
PMID:39095250
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11649473/
Abstract

BACKGROUND

The Cures Act mandated immediately released health information. In this study, we investigated patient comprehension of mammography reports and the utility of online resources to aid report interpretation.

METHODS

Patients who received a normal mammogram from February to April 2022 were invited to complete semi-structured interviews paired with health literacy questionnaires to assess patient's report comprehension before and after internet search.

RESULTS

Thirteen selected patients via purposeful sampling completed interviews. Most patients described their initial understanding of the mammography report as "good" and improved to between "good" and "very good" after an internet search. Patients suggested "a little column on the side" for medical terminology, "an extra prompt" for making an appointment, or a recommendation for "good sites" to improve mammography reports.

CONCLUSION

Patients varied in their ability to independently interpret medical reports and seek additional resources. While online resources marginally improved patient understanding, actionable and clear resources are needed.

摘要

背景

《治愈法案》要求立即发布健康信息。在本研究中,我们调查了患者对乳腺钼靶报告的理解以及在线资源在辅助报告解读方面的效用。

方法

邀请在2022年2月至4月期间接受了正常乳腺钼靶检查的患者完成半结构化访谈,并同时填写健康素养问卷,以评估患者在网络搜索前后对报告的理解情况。

结果

通过目的抽样选取的13名患者完成了访谈。大多数患者表示他们最初对乳腺钼靶报告的理解为“良好”,在进行网络搜索后提升至“良好”与“非常好”之间。患者建议在报告中为医学术语设置“侧边小专栏”,为预约设置“额外提示”,或者推荐“优质网站”以改进乳腺钼靶报告。

结论

患者独立解读医学报告并寻求额外资源的能力各不相同。虽然在线资源在一定程度上提高了患者的理解,但仍需要切实可行且清晰明了的资源。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1c42/11649473/922f23ed69b7/nihms-2016401-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1c42/11649473/7619cf046fc2/nihms-2016401-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1c42/11649473/922f23ed69b7/nihms-2016401-f0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1c42/11649473/7619cf046fc2/nihms-2016401-f0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1c42/11649473/922f23ed69b7/nihms-2016401-f0002.jpg

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本文引用的文献

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Information transparency with immediate release: Oncology clinician and patient perceptions.即时信息透明化:肿瘤临床医生和患者的看法。
Am J Surg. 2024 Jan;227:165-174. doi: 10.1016/j.amjsurg.2023.10.015. Epub 2023 Oct 5.
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Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer.数字健康素养与以人为主的护理:为乳腺癌女性共同创建大规模在线开放课程。
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Understanding the Cures Act Information Blocking Rule in cancer care: a mixed methods exploration of patient and clinician perspectives and recommendations for policy makers.
理解《治愈法案》中的信息阻断规则在癌症护理中的应用:基于患者和临床医生视角的混合方法研究及对政策制定者的建议。
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Patient comprehension of breast pathology report terminology: The need for patient-centered resources.患者对乳腺病理学报告术语的理解:以患者为中心的资源的必要性。
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Patient characteristics and utilization of an online patient portal in a rural academic general internal medicine practice.患者特征及农村学术性普通内科医疗实践中在线患者门户的使用情况。
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Breast. 2022 Feb;61:29-34. doi: 10.1016/j.breast.2021.11.012. Epub 2021 Nov 25.