Feng Sharon J, Yu Michelle, Leong Stephen, Chern Alexander
Department of Otolaryngology-Head & Neck Surgery, Columbia University Irving Medical Center/New York-Presbyterian Hospital, New York, USA.
Vagelos College of Physicians and Surgeons, Columbia University, New York, USA.
Cureus. 2023 Sep 22;15(9):e45801. doi: 10.7759/cureus.45801. eCollection 2023 Sep.
Social media has an ever-growing presence in patients' lives, particularly with the dissemination of both useful and misleading information. We performed an exploration and analysis of content pertaining to cochlear implantation on a popular social media platform.
"Cochlear implant" (CI) was queried on TikTok in early October 2022 in a cross-sectional analysis. The 100 top videos were collected. Non-English and duplicate videos were excluded. Two independent researchers used the Global Quality Scale (GQS) and modified DISCERN tool to score videos; higher ratings indicate increased quality and reliability. Demographic data were also recorded.
Of the 100 videos assessed, 95 met the inclusion criteria. The average video had 2.36 million views, 328 thousand likes, and a duration of 36.1 seconds. The mean GQS was 1.91 (standard deviation (SD) 0.85), and the modified DISCERN score was 1.48 (SD 1.20). Posters were predominantly laypersons (93.7%), including CI users or parents of pediatric CI users. No videos featured audiologists or otolaryngologists. Nearly half of the videos (48.4%) discussed the experience of a patient or parent of a pediatric patient with CIs, and 24.2% were aimed at directly educating the viewers about CIs or the deaf community.
Most videos featured CI users or families of pediatric CI users and detailed specific patient experiences. The deaf and CI communities have strong social media presences. Most videos had limited quality and reliability, measured via the GQS and modified DISCERN tool, and no videos featured hearing healthcare professionals, highlighting opportunities for clinicians to use the platform as a patient resource.
社交媒体在患者生活中的影响力日益增强，尤其是在有用信息和误导性信息的传播方面。我们对一个热门社交媒体平台上与人工耳蜗植入相关的内容进行了探索和分析。
在2022年10月初对TikTok进行了横断面分析，搜索“人工耳蜗植入”（CI）。收集了排名前100的视频。排除非英语和重复的视频。两名独立研究人员使用全球质量量表（GQS）和改良的DISCERN工具对视频进行评分；评分越高表明质量和可靠性越高。还记录了人口统计学数据。
在评估的100个视频中，95个符合纳入标准。平均每个视频有236万次观看、32.8万个赞，时长为36.1秒。GQS的平均得分为1.91（标准差（SD）0.85）；改良的DISCERN评分为1.48（SD 1.20）。发布者主要是外行人（93.7%），包括人工耳蜗植入用户或小儿人工耳蜗植入用户的父母。没有视频以听力学家或耳鼻喉科医生为主角。近一半的视频（48.4%）讨论了人工耳蜗植入患者或小儿患者父母的经历；24.2%的视频旨在直接向观众介绍人工耳蜗植入或聋人社区。
大多数视频以人工耳蜗植入用户或小儿人工耳蜗植入用户的家庭为主角，并详细介绍了具体的患者经历。聋人和人工耳蜗植入社区在社交媒体上有很强的影响力。通过GQS和改良的DISCERN工具衡量，大多数视频的质量和可靠性有限，且没有视频以听力保健专业人员为主角，这凸显了临床医生将该平台用作患者资源的机会。
