Integrated Genetics, Labcorp, Monrovia, California, USA.
Department of Precision Medicine, City of Hope, Duarte, California, USA.
J Genet Couns. 2024 Oct;33(5):1045-1058. doi: 10.1002/jgc4.1816. Epub 2023 Oct 25.
The Jewish population's high risk for certain genetic conditions is well established. The Orthodox Jewish community, a denomination of the larger Jewish population, has distinct customs and cultural practices and a complex relationship with Western medicine and medical genetics. Clergy play a central role as stakeholders in the Orthodox Jewish community, and their input often informs key medical decisions for their congregants. Orthodox clergy have a unique structure for advising their community members, which is based on Jewish law. A qualitative research methods study was conducted to learn more about the needs of Orthodox Jewish clergy in the greater Los Angeles area with regard to prenatal genetic testing. The present study aims to understand the function of clergy, cultural implications in genetics care, and ways to improve cooperation between clergy and medical providers. 18 clergy members were recruited to join the study, with a 100% participation rate. Thematic analysis of individual interviews highlighted four major themes: the multitude of roles of clergy; pragmatic testing; a need for mutual respect; and interactions between medical providers and clergy. The existing community infrastructure may be used as the framework to provide a greater awareness of genetic care to this community. Future research should be conducted to explore how to improve interactions between genetic counselors and Orthodox Jewish clergy and the best practices for cultural competency.
犹太人患某些遗传疾病的风险较高已得到证实。东正教犹太社区是更大的犹太人群体中的一个教派,具有独特的习俗和文化传统,与西方医学和医学遗传学的关系也很复杂。神职人员作为东正教犹太社区的利益相关者,发挥着核心作用,他们的意见常常影响着其教众的关键医疗决策。东正教神职人员在为其社区成员提供建议方面有一个独特的结构,这是基于犹太教法律的。本研究采用定性研究方法,旨在了解大洛杉矶地区东正教神职人员在产前基因检测方面的需求。本研究旨在了解神职人员的职能、遗传护理方面的文化含义以及改善神职人员和医疗服务提供者之间合作的方法。研究招募了 18 名神职人员参与研究,参与率为 100%。对个人访谈的主题分析突出了四个主要主题:神职人员的众多角色;实用测试;相互尊重的需要;以及医疗服务提供者和神职人员之间的互动。现有的社区基础设施可以作为框架,为该社区提供更多的遗传护理意识。未来的研究应探讨如何改善遗传咨询师和东正教犹太神职人员之间的互动,以及文化能力的最佳实践。