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支持精神病患者的家庭教育:一项纵向前后研究方案。

Supporting patients by family education in psychotic illness: a longitudinal pre-post study protocol.

机构信息

Department of Psychology, Concordia University of Edmonton, Edmonton, Alberta, Canada.

Alberta Health Services, Edmonton, Alberta, Canada.

出版信息

BMJ Open. 2023 Oct 24;13(10):e072881. doi: 10.1136/bmjopen-2023-072881.

DOI:10.1136/bmjopen-2023-072881
PMID:37879701
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10603450/
Abstract

INTRODUCTION

A lack of education, resources and support for family carers of young adults with psychotic illnesses leaves them ill-equipped to support their loved one. By equipping families with skills and knowledge, public healthcare harnesses a powerful ally to support community stabilisation.

AIMS

The primary goal is to study the effect of a psychoeducation intervention for family carers supporting young adults with psychosis on family burden and stabilisation of service users.

METHODS AND ANALYSIS

A longitudinal quantitative study with a pre-post design will be used to assess the long-term effectiveness of the psychoeducation intervention for family carers supporting a young adult with psychosis. 111 family carers will be recruited for the intervention and measures will be taken from family carer participants and their matched young adult service users. Nine evidence and family peer-informed and expert-reviewed psychoeducation modules are administered in 2-hour sessions over 9 weeks to family carers. Functional index measures are administered preintervention, and at 6-month, 12-month and 24-month follow-up. Service utilisation will be measured during a 12-month period preintervention, a 12-month period postintervention and during a 12-24-month period post-intervention.

ETHICS AND DISSEMINATION

The study has been reviewed and approved by the University of Alberta Research Ethics Board (Pro00110691). This novel methodological approach to studying family psychoeducation interventions addresses unique methodological challenges and limitations and will be disseminated through peer-reviewed publications and academic and medical conferences.

TRIAL REGISTRATION NUMBER

NCT05500001; National Institutes of Health U.S. National Library of Medicine ClinicalTrials.gov.

摘要

简介

由于缺乏对年轻精神病患者家属的教育、资源和支持,他们无法为亲人提供足够的支持。通过为家庭提供技能和知识,公共医疗可以利用一个强大的盟友来支持社区稳定。

目的

主要目的是研究针对支持年轻精神病患者的家庭照顾者的心理教育干预对家庭负担和服务使用者稳定的影响。

方法和分析

将使用纵向定量研究设计,评估支持精神病青年的家庭照顾者的心理教育干预对家庭的长期效果。将招募 111 名家庭照顾者参加干预,从家庭照顾者参与者及其匹配的年轻成年服务使用者那里获取措施。在 9 周内,以 2 小时的课程向家庭照顾者提供 9 个基于证据和家庭同行提供并经过专家审查的心理教育模块。在干预前、6 个月、12 个月和 24 个月随访时进行功能指数测量。在干预前 12 个月、干预后 12 个月和干预后 12-24 个月期间测量服务利用情况。

伦理和传播

该研究已由阿尔伯塔大学研究伦理委员会(Pro00110691)审查和批准。这种研究家庭心理教育干预的新方法方法解决了独特的方法学挑战和局限性,并将通过同行评议的出版物和学术和医学会议进行传播。

试验注册编号

NCT05500001;美国国立卫生研究院美国国立医学图书馆临床试验.gov。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1283/10603450/0c176e38741e/bmjopen-2023-072881f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1283/10603450/c282433e198a/bmjopen-2023-072881f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1283/10603450/0c176e38741e/bmjopen-2023-072881f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1283/10603450/c282433e198a/bmjopen-2023-072881f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1283/10603450/0c176e38741e/bmjopen-2023-072881f02.jpg

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本文引用的文献

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两种常见的照料负担测量工具的心理测量学特性比较:家庭负担访谈表(FBIS-24)和 Zarit 照料者负担访谈(ZBI-22)。
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